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Hi, a friend of mine is dealing with pain everywhere, and I mean everywhere and we don't understand what he has. He has seen many doctors, taken many tests (CT, MRI, fMRI, EEG, EMG, PET, MRA) and they still havent detected anything odd. Along with that, he has taken X rays everywhere and has tried a ton of different treatment to help with the pain but nothing works. The only thing we know, for certain, about his body is that he had developed carpal, cubital tunnel syndrome, and an ulnar entrapment on both hands 10 months ago. Doctors call this a "Triple Crush", denoting its severity.
Here's the story: 10 months ago, my friend, Chris', hands began twitching (no, not tremors) I don't know if it started with a finger or two. All I know is that it was twitching on and off, and that all these twitches would come and go throughout the day until they became constant (like in a jerking manner).
Chris is a drum teacher so he assumed it was due to excessive drumming so he stopped drumming and simply just went to a doctor. By the time he finally decided to go to a doctor, it had been about a month after the first pain and twitches and had already grown to his arm. When he saw his doctor, his doctor gave him pills to stop the twitching and recommended him to many different neurologists (great ones in the area). After he took all of those tests (the ones listed above) and received results (took a month or two by the way) the doctors didn't seem to know what went wrong.
After about 4-6 months since it all started, his twitching widespread all over his body (only his arms were somewhat constant), but it occured everyday, sometimes even multiple places at once. (EX: leg + arm or foot+hand) But the biggest issue, even though the twitching was embarrassing and made people look down on him, was and still is his PAIN!
IN ALL: His pain started a week into this so he's been dealing with it for about 10 months now, first his hand, then his arm (including shoulder), later his hips, then his legs and feet. All of this physical pain took a toll on his stomach though and the stress eventually caused countless headaches. The pain, in all, is now constant, but after testing 3 different types of pills for twitching, the twitching stopped in the 7th or 8th month but it recently came back slowly.
The pain used to just move around those areas, sometimes top of his shoulder, shoulder blade, collar bone, etc..and happen hourly, (always there though) but now he feels all the pain all at once. This has caused him problems because now he can't teach drums, play drums, hold bags or boxes for too long. Actually, he can't even hold a carpet. Its not just a weakening of his muscles due to inactivity though, he can't walk for too long now. He went from an active lifestyle to having to sleep early to stop dealing with the pain and no, it isn't easy to sleep. Chris always had problems with sleep but now, the pain causes him to stay up longer than usual (no, he hasn't had a sleep study yet) Because of all of this, he is becoming depressed. His mentality now is that when you're in pain all the time you just don't enjoy doing anything you normally did; you're not allowed to have fun anymore (your body won't let you).
My biggest concern is that he has wasted thousands of dollars on different treatments and tests and the only thing doctors concluded was that he could have Neuromytonia, but they took that diagnosis back two weeks after telling him to take more tests (this discovery was made in the 7th month).
I have read many different cases similar to this, like that of HunterD, but they all eventually stop posting and commenting on their condition. I just need to know if there's anything else he should do because I don't know how long more he will be able to take this.
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