CHRONIC PAIN SYNDROME

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Has anyone else been diagnosed with this condition? I shall explain! for 10yrs ive been told i had arthritis in my right hip and right hand giving me chronic pain, only to be seen by 5 different docotrs due to a recent change in location and investigations ive now been told i have , mild oste-arthritis in my right hip and the joint between my thumb and index finger.

Not only that but all differnet 5 doctors have said it was different things. seeing my own doctor today, she said (or applied) that the pain might be in my head, then to turn round and say that she was certain that i had A chronic medical condition and what it was she was unsure of.

Is this Chronic pain syndrome another name for they havent a clue whats going on?

Ipromise the pain im feeling is definatly not in my head nor am i imagining it

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8 Replies

  • Posted

    HI Jacpuss,

    Osteoarthritis is usually diagnosed with Xrays, Rhuematoid arthritis for example is diagnosed through blood tests..... Fibromylagia which again is another painful condition has no xrays or blood work to diagnose but a Specialist can determine if you have this due to tender point located in certain locations of the body.

    My Advice would be ask for a Xray, and ask for blood tests done as you are the patient and its the doctors job to help you, it isnt right you kind of suffering in silence so tell the doctor you want something done asap!!!!

    Regards

    SES

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  • Posted

    thanks for your reply, but my doctors is saying yesterday that the pain could be in my head due to the fact that i have had it so long, that maybe the brain is receiving pain singals when there is none, but i know im in chronic pain i dont want to take medication i dont need to ,then on the other hand she says that she is certain i have a chrnic medical condition and she wants to work with me to find out what it is starting with hydrotherapy, i have had xrays and bloods done and still no proper diagnoses, although i have been diagnosed with this chronic pain syndrome and oseto in my right hand and hip, they cant determind where the rest of the pain is coming from .

    She also says it may take years to get me a better quality of life, and in the meantime i no longer qualify for my Dla untill they know

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    • Posted

      Hello, im new to this forum, from USA. I was diagnosed with MS in 2005 but was told in January of this year that I DO NOT have MS!. WELL, Thats crazy, I get a second opinion and he says the same thing. They have given me a new diagnosis of chronic pain syndrome. I have been in chronic pain for 12 years. All in my legs, feet and ankles. I wake up with PAIN , I go to bed with PAIN. ive been on narcotic medicstion and savella for the last 5 years. It only takes the edge off. Im wanting to get a Spinal Simulator Implant, I would feel a tingling like feeling instead of pain. All the meds ive been on have damaged my stomach, im hoping the implant will help. My whole life is robbed of this chronic pain. I do understand your frustration.
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  • Posted

    Hi Jacpuss,

    I would get a second opinion for example, one doctor i used to see, said I had inflammation in my blood was due to the medication I was on.... when i changed surgeries my new doctor more or less knew from the beginning what was wrong and sent me to Specialist to confirm his theories.....

    [quote:3729f211cd]in the meantime i no longer qualify for my Dla untill they know

    [/quote:3729f211cd]

    With DLA its not the diagnosis its how you are effected on a day to day basis by your ailments, so I do not know why that was said if you were told this? Why will it take years for a better quality of life? the doctor needs to get to the bottom of things now!!!! Not fair you have to suffer!!!! and the worse thing is not knowing why!!!!

    I hope this helps you?

    Regards

    SES

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  • Posted

    thank you xxx

    yes this helped me, and im not in the fortunate position to change my doctor as where we live is a small village and we only have one docotrs surgery here, i am however making another appointment to see her and taking my husband in with me this nd im also making a double appointment so we have time to talk about it as he wants to know a few things too.

    My husband is a reg carer for me and our carers service has said to go ahead and fill in the renewal for DLA and they will help me do it properly this time as in their opinion (like you) i would still qualify for this entitelment , because of the restrictions i have living day to day .

    im happy for you that you have finally been given the correct diagnoses and i hope you are feeling better about it, and yes the worst thing is not knowing whats wrong at least if i knew it had a name i can fight it , you cant fight what you dont know can you x

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  • Posted

    Hi Jacpuss,

    From when I had my little boy which was jan 2006 my health got worse.... the worse began dec 06, back and forth to the doctors I even cried a few occasions.... even had one rhuemo said I had mechanical back strain and I needed to loose weight!!! it took until nov 2008 before I got recognised that I had liver problems as I have Primary Biliary Chriosis, this causes my excruciating joint pain, the joint pain is as though you have been punched from head to toe... I have Osteo Arthritis in neck spine and hip and the OA in the neck causes compression which my hands go numb as they are doing now..... I have been fighting DLA for years I get low rate care..... at least you are gettting recognised your entitlement for your health problems.... I only got diagnosed with PBC in Dec 09, and it is how it is worded on the form I am told....... I have acid reflux, asthma, underactive thyroid etc etc and trying to document all my ailments onto one form is very difficult!!!! I am hoping to hear from my appeal in the next few days..... but I doubt I will get anywhere as the system supports alchos more than people that are entitled to this!!!

    Good thing you are taking your husband, maybe your doctor will take things more seriously x and hopefully he/she may refer you to a Rhuematologist or pain Management Consultant as I was?

    Take care, Kind Regards

    SES x

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  • Posted

    Chronic pain syndrome is what they say if you have had pain for a long time i have had a broken hip for 4 years now (accident at work) i had it pined and plated but that means i am in constant pain and now they say i have chronic pain. Its when they can not see why it is pain full but know it is
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  • Posted

    Malrorated stomach surgery at birth..scar tissue removed in 2004. Inflammation of disc degeneration. Fusions at C-5 and C-7 and shoulder surgeries in ' 93 and '04. Diabetes 1997. Cervical neck cyst infection 2005. Facet, Occipital, Neurogenic; PolyNeuropathy ensues. Nerve stimulator in neck 2012 (so no MRI). Operation for L5 Disc herniation/ compression and traversing right S1 nerve root and aa Synovial lumbar Cyst was removed 2015.

    Yes, I call it doctor roulette. Hang on you will find a doctor that will believe your pain. Too many doctors are full of themselves.

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