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Hi all, I'm new to this forum and was hoping I could gain some of your advice on how to support my partner.
He was diagonsed with Sarcoidosis 3 years ago and I have been with him for over a year now. Admittedly, when he first told me about it I had never heard of the condition before and If I'm being honest, I don't think he knows as much about it as a lot of others who are also dealing with it. Since it's been 3 years and he feels as though he's only feeling worse, he is certain it's not going to get any better for him and avoids researching due to any stories he might read. So ever since he told me towards the beginning of our relationship I have researched it as much as I could to be able to understand a bit more. I will never be able to understand fully what you guys deal with and go through, but my hat is off to each and every one of you fighting it every day.
My partner has good periods and bad, and usually I've been able to determine where I can help, be it ensuring there are healthier meals available to him when I'm not around (we do not live together), to doing the mediocre tasks such as cleaning the kitchen, hanging up laundry and making the bed. I've always had a somewhat understanding of this taking a toll on him mentally however I'm really concerned about him this time around. He recently dropped his preds back down to 10mg a few weeks ago and has since spiralled into a sort of depressive state. He used to distract himself with his career and goals he wanted to achieve, he was so incredibly passionate about his job, but he says he no longer cares and has lost interest in most things he used to enjoy. I hadn't seen him for a couple of weeks and I got a bit of a shock when I finally did, he didn't look himself at all, and I feel like noone else is noticing, not his flatmates, his friends, colleagues, parents. None of them are fully aware of how he feels daily and he's started to shut himself away and just occupy himself with the laptop all the time now.
I figured who else better to ask than the people who have been, and are in his shoes for advice on anything I can do to support him through this period? I won't mother or push him into anything he doesn't want to do, but it doesn't seem right to sit and watch as everyone else is oblivious?
I appreciate anyone taking the time to read this, and I wish you all the very best.
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