Confused on sarcoidosis just what is the truth

Posted , 4 users are following.

I am having a difficult time. I tested for lyme and was positive for ehrlichiosis which is passed by a tick bite. This I had in 2011. I have had 6 and a half years with this as well as typhus. I did private bloodtests from a UK lab. I am in pain to arms, side of ribs, wrists and hands. Prior to my private bloods I had an ACE sarcoidosis which was high. Thing is ehrlichiosis is an exact duplicate of sarcoidosis especially with lung involvement but one is treated by steroid and one with antibiotic. Doxycycline really helps and I am clear for a couple of months. Infectious diseases seem to be jumping on sarcoid rather than a lyme co infection. I am beginning to lose faith in anything I hear. I have a fight on my hands to get the right treatment for the right diagnosis. Ehrlichiosis can affect bone marrow and is infectious has anyone had a problem with bone marrow with sarcoidosis? I feel as though these two diseases are the same.

0 likes, 18 replies

18 Replies

Prev
  • Posted

    Yes sarcoidios can effect bone marrow spinal fluid and every organ I am a stage 4 sarcoidios it's attacked everything including my eyes only thing left is my brain stem that hasn't been attacked YET it's painful but with the right doctors and a sarcoidios specialist . I do weekly methotrexate injections and that has seemed to be working on controlling my harsh coughing spells. I wish you the best in this TOUGH journey.

    Gina

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.