Covid for 4 weeks & still bed ridden. Anyone else had prolonged severe illness without hospitalization
Posted , 209 users are following.
Hi,
I've had Covid19 for 4 weeks and if I had the energy I'd be tearing my hair out.
I've had 2 sets of prohylactic antibiotics to safeguard against bacterial infections, my temperature has been up and down but never higher than 38 the entire illness.
I've had severe neuropathy during the illness and some kind of night seizures accompanying the other more well publicised symptoms that mean my sleep is terrible also.
I went to hospital Day 14 after a week of seriously thinking I'm on death's door and my blood oxygen was good enough to be sent home for follow up at the Covid Hubs where they basically just take temperature, pulse and oxygen levels.
I was prescribed a 2nd course of antibiotics there as my temperature was still up and they are checking in on me every few days.
Meanwhile I am having one better day, then another terrible day, then a better day then a worse day..But 'better' is still bed ridden, just means I can breath well enough and not too dizzy to make myself my own cup of tea, have a shower and engage in some small talk with my family.
Everytime I have a good few hours I think, that must be me getting well now, but no, 4 weeks later and the last 24 hrs my breathlessness has been worse than it was for the previous 5 days..Am about ready to shoot myself.
Is there anyone else that's experienced being so ill with this virus outside of an ICU setting where it's carried on this long?
Even ICU patients are recovering in 3-6weeks .
Cannot understand why I'm not getting well yet.
I have no underlying health issues and I'm in my 30s.
I don't know if I still have Covid or if this is post viral inflammation and fatigue..There is no way of knowing as they are not testing community cases. Every doctor just says it's definitely Covid but I have no idea if I've passed the peak of the illness or if i should still be worried it could get worse.
Just feel it's going on forever.
Be great to know if there's any non hospital stories of people being sick, as in still unable to do a thing this length of time.
Thanks!
19 likes, 5383 replies
susan48029 Res35
Edited
It's strange as I always get more anxious at nights as well, I'm going to be on week 10 on Friday and this week my symptoms seem to be improving but my gp prescribed antidepressants as I was really depressed and gave me diazepam prn also zopiclone to sleep so weather its these working I don't know, but my breathing seems to be improving and I'm walking etc, not been to a shop yet tho or driven my car but I am thinking about work again which is a good sign. Fingers crossed 💜
Lulu2020 susan48029
Edited
Really good to hear you are improving Susan - I think the anxiety/depression is probably to be expected given what we've been through and length of illness. People who have been in lockdown and not been ill are saying they are depressed! Am sure as you improve further you can reduce the antidepressants but I am a great advocate of anything which helps get you through and even better if helping with the sleep, as the lack of sleep was awful. I am a week behind you so hopeful things continue to improve and won't be too much longer before we are back to "normal" and let's pray we've all got a decent dose of anti bodies!
Take care,
Lx
susan48029 Lulu2020
Edited
Let's hope were all be better soon I'm doing yoga and breathing exercises as well and walking more hilly areas but I relax in late afternoon and do my yoga. X
Gazza10 Lulu2020
Edited
Morning lulu weird day yesterday headache mostly went to see kids came home finally settling down been waking up on and off sweating but no temperature awake early again but that's normal for me drinking water only not dehydrated little fatigue but not overly tired strange night with little sugar see how the day pans out my mate recommends try some natures plus so going to try them Gary
jim90098 Gazza10
Edited
Morning guys,
Yesterday wasn't good and only a few hours sleep.
Last night was a repeat of 5 hours, rubbish!
This morning feel shattered again but also nauseous.
Week 8 tomorrow anyone been the same?
Jim.
Lulu2020 Gazza10
Edited
Morning!
wonder if the headache made worse by the weather? I had headache last night and don't normally suffer but sat in sun for around 4 hours with my mini bottle of fizz! Was lovely! Anyway we are blaming everything on C19 now regardless of what it is!
Sounds like you are doing ok though and things are improving - I have my CT scan today and results Friday am keeping calm at moment just want this all done and dusted and get on with my post Covid life!
Glad you got to see your kids that must have given you a lift!
Have a good day
L x
jim90098 Lulu2020
Edited
Lulu,
Good luck with the scan, I'm sure everything will go well.
Jim.
Gazza10 Lulu2020
Edited
No the headaches are not weather related stayed in the shade with the kids not to worry back to park this morning only a couple times round felt good so if all OK today will push on tomorrow got stuff to do today hope you all have a good one gary
Gazza10 jim90098
Edited
Just the struggles with the little sugar Jim was thinking you was having a bad day you must be due some good ones week 8 as well the turning point I really hope you have a few good days Jim and let's crack on to week 12 then push on again have a good one gary
jim90098 Gazza10
Edited
Fingers crossed Gary.
Glad you enjoyed the park and seeing your kids.
Thanks.
Gazza10 Lulu2020
Edited
I'm going to blame everything on covid anyway lulu deserves it glad you enjoyed your mini fizzes hope all goes well for the ct scan catch up with you later guys and girls Gary
Lulu2020 jim90098
Edited
Thanks Jim, how are you getting on?
Lx
susan48029 Lulu2020
Edited
Good luck with your ct scan today lulu 💜
jim90098 Lulu2020
Edited
Hi Lulu,
I realised yesterday that the three days prior I had improved, however yesterday I felt as we all have totally exhausted. I cleaned my teeth but had no energy to have a wash, which goes totally against my normal way of life. Apparently, my family and friends all think I've got OCD.
The past two nights have been a test of sleep deprivation too.
For some strange reason today I've started with nausea. Err.
Oh and still shattered. I fell asleep watching Mike & Molly after breakfast, sat up on the sofa.
Glad I didn't get a cricked neck in the process.
Fortunately, I've have hung onto my breakfast, so far.
The sun is out and I've been in the garden for 10 minutes for a walk.
Hopefully all our days improve greatly.
Jim.
Lulu2020 susan48029
Edited
Thanks so much, Hope you are having a good day.
Lx
Lulu2020 jim90098
Edited
Hi Jim, sounds like moving in the right direction generally if there has been improvement over last three days? but still with the odd bad day thrown in to the mix. Sounds like today needs to be a day of rest.
Hope the day improves for you and maybe you can sit in the garden later on when it cools down a bit - have you ever thought of a little tipple at night to help you sleep - a small whisky or brandy (just a nip) it may help but depends whether you enjoy a little drink or not. By the way I don't drink a lot in case anyone can see a recurring alcohol theme in my posts (!!) but have found my small glass of wine with dinner really takes the edge of things and relaxes me for the evening! I know people have said not to drink but there is "drinking" and "drinking" and this is definitely for medicinal purposes and surely just a small glass of something can't hurt. I'll check with the specialist on Friday - another question to add to the list!!
Take care,
Lx
jim90098 Lulu2020
Edited
Hi Lulu,
Thank you for the kind words.
I'm partial to a beverage being a Yorkshireman but have abstained for 8 weeks.
I might give it a whirl.
Take care,
Jim.
Rufio222 jim90098
Edited
Hey everyone,
Yes this thing is hard to shake. I felt good for a few days but that chest pain keeps coming back whenever I drive or try to pick up groceries or go on a long walk. I am going to try to get back to work Saturday and hopefully I can take it easy, since two doctors have said my heart and lungs are good. Still very nervous about it, but I will probably be nervous about doing much of anything for a while after this experience. I am either starting week 10, or I got a mild case 10 weeks ago, got better for a while, then caught it again hard 5 weeks ago. I guess it is impossible to know, but I am pretty frequently exposed at work.
Lulu I hope your CT scan goes well. And I hope everyone has a much easier time sleeping soon! Melatonin usually helps.