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Covid for 4 weeks & still bed ridden. Anyone else had prolonged severe illness without hospitalization

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Res35
Res35

Hi,

I've had Covid19 for 4 weeks and if I had the energy I'd be tearing my hair out.

I've had 2 sets of prohylactic antibiotics to safeguard against bacterial infections, my temperature has been up and down but never higher than 38 the entire illness.

I've had severe neuropathy during the illness and some kind of night seizures accompanying the other more well publicised symptoms that mean my sleep is terrible also.

I went to hospital Day 14 after a week of seriously thinking I'm on death's door and my blood oxygen was good enough to be sent home for follow up at the Covid Hubs where they basically just take temperature, pulse and oxygen levels.

I was prescribed a 2nd course of antibiotics there as my temperature was still up and they are checking in on me every few days.

Meanwhile I am having one better day, then another terrible day, then a better day then a worse day..But 'better' is still bed ridden, just means I can breath well enough and not too dizzy to make myself my own cup of tea, have a shower and engage in some small talk with my family.

Everytime I have a good few hours I think, that must be me getting well now, but no, 4 weeks later and the last 24 hrs my breathlessness has been worse than it was for the previous 5 days..Am about ready to shoot myself.

Is there anyone else that's experienced being so ill with this virus outside of an ICU setting where it's carried on this long?

Even ICU patients are recovering in 3-6weeks .

Cannot understand why I'm not getting well yet.

I have no underlying health issues and I'm in my 30s.

I don't know if I still have Covid or if this is post viral inflammation and fatigue..There is no way of knowing as they are not testing community cases. Every doctor just says it's definitely Covid but I have no idea if I've passed the peak of the illness or if i should still be worried it could get worse.

Just feel it's going on forever.

Be great to know if there's any non hospital stories of people being sick, as in still unable to do a thing this length of time.

Thanks!

19 likes, 5383 replies

5383 Replies

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  • stuart68c
    stuart68c Res35

    Edited

    Hi all, thanks so much for the good wishes and advice. I can't tell you how great that feels, it puts a smile on my face.

    I have been and had an Xray and blood test but that's it. My doc had given me the notes to take to the relevant departments and told me to go straight to them. All very quick as there was hardly anyone there.

    Steph thanks for the A&E recommendation but unfortunately I didn't see your post until I got home and didn't go. I so wish I had, I suppose I was concentrating on getting the other stuff done. To be honest I struggled to think straight as it took every ounce of energy to get up and drive there and for some reason I was totally wracked with anxiety. I feel like I missed an opportunity to get checked out.

    Since I got home I've felt awful. The worst headache of the whole experience with Little Sugar. I have had to crawl into bed and even find writing this post a struggle. I don't know what's happening and why I am starting to feel worse after 8 weeks. Sorry to give you negative news. Maybe it's just the after effects of emotional and physical exertion.

    Hopefully my tests come back fine. I also have a virus test coming to me in the post which I obtained off the government website so that's good news!

    I sincerely hope you all feel better today, and tomorrow and continuing after that to full fitness.

    • viv72815
      viv72815 stuart68c

      Edited

      so glad that you have been seen stuart. i think it would wear me out too and the stress of it doesnt help. have a sleep and hppefully you will feel better. im glad no one has got back to you today in a funny sort of way that must mean that its all good x

    • Lulu2020
      Lulu2020 stuart68c

      Edited

      Stuart good you've been and had tests but it is exhausting. I too went for chest xray at 8.00 this morning didnt sleep well was worrying and have felt pretty rubbish all day - tired, anxious, sad. I think it just reminds you going to hospital you are still unwell but hopefully things will improve for us all and we will get positive results. I think if they had seen anything too worrying on x-ray doc would have been in touch before weekend - that is what Im telling myself!

      Viv, I can't believe only 10% - I know two other people locally who have had it and both ill for a good 6 weeks and a friend of a friend also sick for over 6 weeks. A colleague at work still in bed after 6 weeks. I definitely think Gov are playing it down to get people back on the tube and work.

    • jim90098
      jim90098 stuart68c

      Edited

      Stuart,

      Im so glad you managed to get those tests done but Im gutted for you regarding being wiped out by the event.

      Hopefully youll have a steady night and sleep. Fingers crossed.

      Im having a repeat of yesterday. Started shaking around ten am and still having the odd shudder and my ribs are aching? Strange.

      Youll believe this but non sufferers wouldnt. All ive done today is eat, lay on my bed and go downstairs twice.

      Once to go in the garden for half an hour the other to sort my sputum test.

      Shattered is the phrase I think.

      Top stuff about the test.

      Im sure your tests will be okay too.

      Rest my pal.

      Im going to watch MacMafia again. 

    • jim90098
      jim90098 Lulu2020

      Edited

      Lulu,

      Thatll be a political spin so they can ease the lockdown.

      Itll come out eventually as all things do but itll be too late.

    • stuart68c
      stuart68c Lulu2020

      Edited

      Hi Lulu, thank you, I am relieved it's done. Well done to you for going, I know from my own day's events it won't have been easy getting up and going there. I slept badly last night too and felt really on edge. It seems we shared the same experience. Thanks for putting it into words, it has helped a lot.

    • stuart68c
      stuart68c

      Edited

      Lulu, I was told that the Xray might be a few days with the results.

    • stuart68c
      stuart68c jim90098

      Edited

      Hi Jim, good to hear from you. Yes it's been a funny old day! 😂 Glad it's over. Very sorry to hear about your symptoms today. I feel lucky that I don't have to put up with that. Hope it calms and you feel better ASAP.

      Have to admit that your daily schedule sounds mighty familiar to me, maybe tomorrow you'll make it downstairs three times! On the plus side you're at least able to catch up on some TV, you may as well try to enjoy the ride hey?! My daily pleasure has become watching the birds in the garden, I've even named some of them!! 😂

      Take it easy and get well Jim.

    • viv72815
      viv72815 Lulu2020

      Edited

      wow lulu

      i do not know anyone that has suffered as long as me. my one friend had it for 3 weeks but now fully recovered. my brother and his wife had it for just over a week and now they are both back at work.

    • viv72815
      viv72815

      Edited

      sorry stuart

      i added the last bit on about them not getting in touch and it was meant for lulu

    • Lulu2020
      Lulu2020 viv72815

      Edited

      It might be as I mix generally in an older age group am 61 albeit a young fit 61 with no underlying health issues - well I was up until 8 weeks ago now feel and look about 91! Unbelievable will never take good health for granted again.

    • viv72815
      viv72815 Lulu2020

      Edited

      i am 57 lulu so not such an age difference. looking and feeling 87 lol. having a good few hours at the moment just a niggle in my back and ribs hope it stays like that. hope you have a good night x

  • viv72815
    viv72815 Res35

    Edited

    hi everyone

    can i ask what medication for symptoms people are taking. at the moment i am only taking paracetomol but watching bbc update just a scientist has just said that people are complaining with muscle pain. does anyone take ibuprofen and does it help. apparently only 10% of patients suffer for over three weeks. i didnt want to join this club. Thank you

    • stuart68c
      stuart68c viv72815

      Edited

      Hi Viv, thanks for your good wishes.

      I have been taking paracetamol at night, not used Ibuprofen probably because of the bad press it got to start with but also I need to eat first when I have it.

    • MRMR
      MRMR viv72815

      Edited

      Viv

      I started taking ibuprofen when I had uncontrollable shivering 14 days ago. Tbh, I don't know if they helped or whether the shivers went away on their own about 5 days ago. Also been prescribed inhalers for asthma-type wheeze which I haven't had for years. Again, don't know if they're helping or not, but wheeze certainly manageable now. I think it's OK to take ibuprofen now, but maybe check with GP if concerned. Other than that, I take a combined turmeric and ginger supplement (was taking it anyway) and high strength Vit D. Making a point of getting out in sunshine as well.

      Don't know if that's helpful.

      Mary x

    • viv72815
      viv72815 MRMR

      Edited

      thankyou mary

      think i will try them tonight and paracetamol see if i can sleep past 4.30 . have a good night x

    • viv72815
      viv72815 stuart68c

      Edited

      thanks stuart

      its terrible the way the appetite comes and goes isnt it. i didnt eat yesterday but have been ok today. hope you have a good night x

    • jim90098
      jim90098 viv72815

      Edited

      Viv,

      I take vit c and d and a multivit.

      Aspirin to try to thin the blood due to the blood pressure.

      Keep fighting young lady we'll get through this....

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