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Covid for 4 weeks & still bed ridden. Anyone else had prolonged severe illness without hospitalization

Posted , 209 users are following.

Res35
Res35

Hi,

I've had Covid19 for 4 weeks and if I had the energy I'd be tearing my hair out.

I've had 2 sets of prohylactic antibiotics to safeguard against bacterial infections, my temperature has been up and down but never higher than 38 the entire illness.

I've had severe neuropathy during the illness and some kind of night seizures accompanying the other more well publicised symptoms that mean my sleep is terrible also.

I went to hospital Day 14 after a week of seriously thinking I'm on death's door and my blood oxygen was good enough to be sent home for follow up at the Covid Hubs where they basically just take temperature, pulse and oxygen levels.

I was prescribed a 2nd course of antibiotics there as my temperature was still up and they are checking in on me every few days.

Meanwhile I am having one better day, then another terrible day, then a better day then a worse day..But 'better' is still bed ridden, just means I can breath well enough and not too dizzy to make myself my own cup of tea, have a shower and engage in some small talk with my family.

Everytime I have a good few hours I think, that must be me getting well now, but no, 4 weeks later and the last 24 hrs my breathlessness has been worse than it was for the previous 5 days..Am about ready to shoot myself.

Is there anyone else that's experienced being so ill with this virus outside of an ICU setting where it's carried on this long?

Even ICU patients are recovering in 3-6weeks .

Cannot understand why I'm not getting well yet.

I have no underlying health issues and I'm in my 30s.

I don't know if I still have Covid or if this is post viral inflammation and fatigue..There is no way of knowing as they are not testing community cases. Every doctor just says it's definitely Covid but I have no idea if I've passed the peak of the illness or if i should still be worried it could get worse.

Just feel it's going on forever.

Be great to know if there's any non hospital stories of people being sick, as in still unable to do a thing this length of time.

Thanks!

19 likes, 5383 replies

5383 Replies

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  • richard53574
    richard53574 Res35

    Edited

    Hi everyone I described my early symptoms to this site more than 2 weeks ago and now going into my sixth week most of my symptoms have lessened or disappeared completely.I still get a little breathless once in a while but that could be from inactivity.Its amazing because this virus turned me into a person i wasnt familiar with, full of an unusual darkness and an overpowering feeling of just being unwell.Ive had my share of various illnesses in my life but never experienced anything like this.I wouldnt say im fully recovered but im well on my way.Please just hang in there everybody you will get better.Imagine the virus as a soccer ball you have to keep kicking it as hard as you can.Professor Garner said this virus has a long tail.I guess the length varies from one person to the next.Things that have helped are CBD oil for anxiety my beta blockers for my afib.melatonin for sleep and your favorite music Me i never get tired of the Beatles or David Bowie.Plus dont forget to eat healthy foods and take lots of vitamin C and D.I will keep reading your postings with great interest. And ill say it again YOU WILL GET BETTER ! Richard from NJ

    • jim90098
      jim90098 richard53574

      Edited

      Hi Richard,

      Great update and news!!!

      Fingers crossed we all recover fully.

      Jim.

    • Lulu2020
      Lulu2020 richard53574

      Edited

      Hi Richard

      Great positive update, am very happy you are well on the road to recovery. I think it has definitely been the fear of the unknown which has, quite rightly, freaked us all out and all the weird symptoms dragging on for so long and anything associated with breathing is of course very scary. I too am a positive person and have never really been ill before and can't believe how badly this has affected me. I genuinely thought if I got it, being fit I would just shake it off in a few days - think the message from the Government has been a bit misleading - mild or critical - not much mention of all the people like us who are somewhere in between.

      We live at the top of one the highest hills and I have been tottering around the last few days at the top but decided to go for it and walk down today - I had to stop on the way up for breath and heart rate was high but it wasn't too much of a struggle - just hope it doesn't set me back but I am so fed up tippy toeing around this virus after 8 weeks I feel that I need to set myself some challenges (albeit sensible and achievable ones!)

      Am now listening to my favourite playlist, no news on TV, no negativity, just don't need it in my life at the moment and couldn't agree more with your advice. Can reasonate with Professor Garner's comment of a virus with a long tail - hopefully we are all at the very end thin part of the tail by now.

      Take care, hoping everyone has a peaceful evening and sending positive thoughts x

    • Lulu2020
      Lulu2020 maciej12002

      Edited

      Hi

      Cough is still there but am only really coughing first thing in morning and evening when I try and clear the mucous in the shower. It feels a bit looser now if that makes sense rather than the dry cough but am still taking the anti mucous meds and am coughing up phlegm (white.. Eugh). I might have the odd intermittent cough during day (normally as soon as my husband gets near me much to his delight) but hardly at all now - my throat still feels a bit sore but not to the extent of taking painkillers - I wonder if it is because breathing harder through mouth making it sore as seems worse when exerted myself. I am awaiting result of chest x-ray which should come through Mon or Tues so will update then. My main issues are heart rate seems high but varies day to day (seems a bit high today) and the breathlessness.

    • stuart68c
      stuart68c richard53574

      Edited

      Hi Richard, thanks so much for the update. Really happy you're feeling better. It gives us all a necessary positive boost. How many days have you been feeling better for?

    • richard53574
      richard53574 stuart68c

      Edited

      hello stuart i have been feeling well for about 10 days but they have been interrupted sporadically by slight breathless periods.Happily these spells dont last more than an hour or two.Another thing i forgot to mention is i still dont get a complete nights sleep.5and a half to 6 hours is all im getting now.As i said im about 75% better than i was 3 weeks ago which ill take without complaining.Wishing you all the best.

    • Res35
      Res35 richard53574

      Edited

      Thanks Richard , So Pleased!

      Feel the same...Much better...finally!

      And yes, those still in it...hang on in there...It WILL improve..Is just very slow and patchy.

    • stuart68c
      stuart68c richard53574

      Edited

      Thanks Richard, great to hear from you. I had a period of 7/8 days of steady improvement to a good point only to go back to square one. That was between week 6 and 7. It's really heartening to hear you've got to 10 days 😍😍😍 All the best to you and please keep us updated.

  • cat73884
    cat73884 Res35

    Edited

    Hiya,

    I have seen a few of the posts recently but not all of them. I was on here a couple of weeks back but, because I have been so up and down, I haven't posted anything else. I have had over a week now ( I am now at 8 weeks from start of being ill) of feeling a lot better. Still a bit exhausted at times but a lot more better times than bad, no breathing problems recently and feel generally more positive. Hope that this helps to see a light at the end of the back and forth tunnel.xx

    • stuart68c
      stuart68c cat73884

      Edited

      Hey Cat, great news! I passed 8 weeks yesterday so I hope I follow you. Keep getting well, we are all rooting for you.

    • viv72815
      viv72815 stuart68c

      Edited

      me to stuart i am in my 8th week tomorrow. its feeling more positive now. lets hope the good days start to outweigh the bad ones.

    • Lulu2020
      Lulu2020 viv72815

      Edited

      And me! 8 weeks on Monday - maybe 8 is the magic number and things settle down - let's all hope so and keep everything crossed.

      So pleased to hear things have improved for you Cat and thanks for the positive post.

    • joanne82424
      joanne82424 cat73884

      Edited

      great news, really pleased for you. Just what we need to hear 😃

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