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Covid for 4 weeks & still bed ridden. Anyone else had prolonged severe illness without hospitalization

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Res35
Res35

Hi,

I've had Covid19 for 4 weeks and if I had the energy I'd be tearing my hair out.

I've had 2 sets of prohylactic antibiotics to safeguard against bacterial infections, my temperature has been up and down but never higher than 38 the entire illness.

I've had severe neuropathy during the illness and some kind of night seizures accompanying the other more well publicised symptoms that mean my sleep is terrible also.

I went to hospital Day 14 after a week of seriously thinking I'm on death's door and my blood oxygen was good enough to be sent home for follow up at the Covid Hubs where they basically just take temperature, pulse and oxygen levels.

I was prescribed a 2nd course of antibiotics there as my temperature was still up and they are checking in on me every few days.

Meanwhile I am having one better day, then another terrible day, then a better day then a worse day..But 'better' is still bed ridden, just means I can breath well enough and not too dizzy to make myself my own cup of tea, have a shower and engage in some small talk with my family.

Everytime I have a good few hours I think, that must be me getting well now, but no, 4 weeks later and the last 24 hrs my breathlessness has been worse than it was for the previous 5 days..Am about ready to shoot myself.

Is there anyone else that's experienced being so ill with this virus outside of an ICU setting where it's carried on this long?

Even ICU patients are recovering in 3-6weeks .

Cannot understand why I'm not getting well yet.

I have no underlying health issues and I'm in my 30s.

I don't know if I still have Covid or if this is post viral inflammation and fatigue..There is no way of knowing as they are not testing community cases. Every doctor just says it's definitely Covid but I have no idea if I've passed the peak of the illness or if i should still be worried it could get worse.

Just feel it's going on forever.

Be great to know if there's any non hospital stories of people being sick, as in still unable to do a thing this length of time.

Thanks!

19 likes, 5383 replies

5383 Replies

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  • Aliq
    Aliq Res35

    Edited

    hi Res,

    Sorry to bother you again but I cant seem to find anyone whose symptoms sound like mine.

    Can I ask how long the night seizures lastested and if you were left feeling shaky and breathless the following day? I have just had another couple of bad nights, it starts with heat up my back and arm and legs, muscles feel like they are being squeezed and there are tingling sensations arms and legs. Also get breathless and following day quite shaky.

    has anyone had these symptoms, would love to hear from you

    • MRMR
      MRMR Aliq

      Edited

      Hi Alison

      I do feel for you. It sounds like you are going through a particularly rough stage of this awful thing. I had severe night shivers (uncontrollable body shaking) in the middle of my 9 week (currently) journey. They were in the midst of when I was really ill, so had awful breathlessness and went to A and E several times. At the time, I felt either very hot or (mostly) very cold. Often had muscle aches and generalised severe body weakness.

      The good thing is that these symptoms have just about all gone. 'Just' left with tight chest, wheeze/occasional chest aches, weird throat and fatigue. Have sticky eyes as well.

      You will get through it, so do be hopeful and know it will pass.

      Mary x

    • Gazza10
      Gazza10 Aliq

      Edited

      Morning Alison and Mary you two up early I have had the tingling arms and legs Alison not the same but mine is the sweats my pillow was soaked last night then after that I finally got a good sleep five hours I'm suffering from dry mouth got something coming today left the window open helps yesterday woke up fatigue not too bad today I'm sure someone will have similar symptoms Alison and I feel these ones you are having will change or sieze try and enjoy your weekend Gary

    • MRMR
      MRMR Gazza10

      Edited

      Hi Gary

      I always wake up early, partly because the window blinds are useless and the early morning light and dawn chorus wake me up!

      It must be horrible for you to still have sweats like that. I hope they stop soon👍

      Another lovely day ahead weather wise. Putting tent up in the garden later, for a 'holiday at home'!

      Went to park again yesterday with daughters, which did us all good. A change of scene really helps with lifting the spirits. Saw a friend too (at a very safe distance!) which also helped.

      Have a good day everyone x

    • Gazza10
      Gazza10 MRMR

      Edited

      Yes I hope they do too Mary been for a walk this morning it feels OK so going to see kids later as well enjoy yourself today as well Gary x

    • dawn84999
      dawn84999 Gazza10

      Edited

      Hi,

      Snap Gary ,woke up about 4 times in the night with the hot sweats,also leave my window open.Also the dry mouth even though I drink throughout the night too.

      I've also had strange tingling sensations only in my legs though Alison but not noticed it for about a week.I also feel very shakey at times.

      Yesterday was full of mixed emotions, recieved delivery of beautiful flowers and gifts from my work colleagues which was lovely .

      Managed a little ironing but it shocked me how heavy the ironing board felt and after my chest felt tight again.

      Last night the anxiety got the better of me,think the call from the doctors receptionist set me off telling me I have an appointment made for Monday for the Echo but the doctor will call me before then to ask me some questions.

      This morning I feel really groggy no headache and a bit shakey can't stomach breakfast just yet though .My throat and chest feel tight this morning too.Hope I brighten up a bit later.

      Have a lovely day visiting your children today Gary .

      Hope everyone manages to enjoy a bit of sunshine x

    • joanne82424
      joanne82424 Aliq

      Edited

      Hi Alison

      sorry you are having such a rough time. I had a lot of tingling in my arms and legs in the first few weeks, especially at night. Every time I lay down it started, I had to sit up in bed and even then it often happened, and I would have to get up for a while, make a drink, wander round etc.

      Even now I can't lie down in bed at first, I'm propped up on loads of pillows!

      I'm having rough nights at the moment with rapid heartbeat/ stomach churning.

      I'm trying to keep cool and calm at night, if possible. I open the window, throw off bed covers, drink water, use cold flannel, sitting forward helped with breathing.

      Hope you're feeling better soon

    • Gazza10
      Gazza10 dawn84999

      Posted

      I have ordered something for my dry mouth had to do it twice because the orelieve I ordered first is not coming till the 8th June so trying another first it feels better with the window open the sweats are not nice Dawn I feel for you this morning as I am fine but your work colleagues must have cheered you up I will let you know if the dry mouth stuff works or not will try it out later have a good day dawn x

    • joanne82424
      joanne82424 dawn84999

      Edited

      All the best with your appointment, Dawn.

      What a lovely surprise for you from your work colleagues, it's always uplifting to get flowers.

      Enjoy your weekends everyone!

    • dawn84999
      dawn84999 Gazza10

      Edited

      Hi Gary,

      Yes let us know if it works.

      And thank you,enjoy your day x

    • dawn84999
      dawn84999 joanne82424

      Edited

      Ahh thank you Joanne.

      Its true ,we all need that little uplift.

      Have a good day x

    • Gazza10
      Gazza10 dawn84999

      Posted

      Morning dawn I had the same wet night not too bad managed about five hours again didn't receive my delivery for the dry mouth one of the residents has signed for it so I will try that tonight I feel like it is improving with the window open no fatigue this morning little sore throat but that comes and goes just reading Google news about track and trace testing another thing gone pear shape hope you had a dry night gary

    • Gazza10
      Gazza10

      Posted

      .my brother brought me round a bottle of oraldene it seems to be doing the trick with the dry mouth all I need now is something for the sweats throat and lungs and a hair cut Gary

    • dawn84999
      dawn84999 Gazza10

      Posted

      Morning Gary,

      Saturday night the dry mouth and sweats was quite bad but started off with chills as well ,not had them for a few weeks,last night dry mouth not as bad but still had the hot sweats.Only Managed about 5 hours sleep again and been awake since 4!.

      I'll check out the oraldene,thanks.Glad it worked for you ,another one off the list ,tick .

      Have a good day x

  • dane15
    dane15 Res35

    Edited

    Hi all, I've had a tough few days. 11 weeks and an awful new symptom of chest tightness started, feels like something sitting on my chest. I know some of you have had this as a symptom from early on in the virus journey but I don't get why I'm getting this in week 11! Also, my veins are feeling odd and are very pronounced especially in my right arm and hand. I can also feel strong pulses across my body...dry throat, back pain and quite breathless...feeling like I'm still sick rather than recovering! 😦 will prob visit a and e tomorrow

    • MRMR
      MRMR dane15

      Edited

      Hey Dane

      Sorry to hear that. Not good to feel like this now or so late at night. Do you need to go to A&E now?

      Try not to worry if you can

      Mary

    • Rufio222
      Rufio222 dane15

      Edited

      Dane don't be afraid to visit right away if you think it is something serious. Doctors and ambulance crews in the USA usually tell people to get chest pain checked out right away to rule out heart trouble. But you know how you're feeling better than anyone else so I don't mean to scare you. Also my pain has only been on the left side so even after two normal ECGs and xrays, I am still very sensitive to thinking the worst when I feel it. This may not be the case for you. I hope you feel better tonight.

    • rlwings
      rlwings dane15

      Edited

      I agree with the other replies here. Onset of chest pain this late in the game (week11) sounds a bit uncharacteristic of how Covid seems to be playing out in a lot of people here... Chest pain is definitely not something to mess around with. I would just take myself to emerge and get checked. Sounds like your vascular system is somehow being affected as well... Don't mean to scare you, but better to be safe, right?

      Please let us know what you find out if you decide to go.

    • Gazza10
      Gazza10 dane15

      Edited

      I would go straight to a and e to get it checked out dane they won't be too busy so should be able to see you straight away Gary

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