Covid for 4 weeks & still bed ridden. Anyone else had prolonged severe illness without hospitalization
Posted , 209 users are following.
Hi,
I've had Covid19 for 4 weeks and if I had the energy I'd be tearing my hair out.
I've had 2 sets of prohylactic antibiotics to safeguard against bacterial infections, my temperature has been up and down but never higher than 38 the entire illness.
I've had severe neuropathy during the illness and some kind of night seizures accompanying the other more well publicised symptoms that mean my sleep is terrible also.
I went to hospital Day 14 after a week of seriously thinking I'm on death's door and my blood oxygen was good enough to be sent home for follow up at the Covid Hubs where they basically just take temperature, pulse and oxygen levels.
I was prescribed a 2nd course of antibiotics there as my temperature was still up and they are checking in on me every few days.
Meanwhile I am having one better day, then another terrible day, then a better day then a worse day..But 'better' is still bed ridden, just means I can breath well enough and not too dizzy to make myself my own cup of tea, have a shower and engage in some small talk with my family.
Everytime I have a good few hours I think, that must be me getting well now, but no, 4 weeks later and the last 24 hrs my breathlessness has been worse than it was for the previous 5 days..Am about ready to shoot myself.
Is there anyone else that's experienced being so ill with this virus outside of an ICU setting where it's carried on this long?
Even ICU patients are recovering in 3-6weeks .
Cannot understand why I'm not getting well yet.
I have no underlying health issues and I'm in my 30s.
I don't know if I still have Covid or if this is post viral inflammation and fatigue..There is no way of knowing as they are not testing community cases. Every doctor just says it's definitely Covid but I have no idea if I've passed the peak of the illness or if i should still be worried it could get worse.
Just feel it's going on forever.
Be great to know if there's any non hospital stories of people being sick, as in still unable to do a thing this length of time.
Thanks!
19 likes, 5383 replies
jim90098 Res35
Edited
Guys,
As you know I've had my up's and downs with this tripe. Yes, I've definitely had more downs than up but there has been an improvement looking back over the weeks.
I'm now on week 9 and early this afternoon suddenly felt washed out, sick and started shaking uncontrollably again. Throats closing, my nose is blocked and I've got a rash across my nose and face.
All bar the feeling sick reminded me of the first two or three weeks. I couldn't eat even if I tried. I even fell asleep this afternoon.
My sats are okay.
Anyone else had a relapse like this so far on?
Jim.
dawn84999 jim90098
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Oh Jim so sorry to read this,I'm only on week 7 so can't help there .Really hope it's very short lived for you and that you feel better very soon x
Res35 jim90098
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Sadly yes Jim.
Have a lot of relapses.
It's disheartening.
Could the rash be hives though? You feeling anxious?
Also shakes could be blood sugar. Is your diet ok? I know my blood sugar took a real hit with this virus earlier on and I had to be eat more careful than normal around nutrition. Any sugar made me dizzy and sick and shaky.
Either way Jim get to bed and rest.
See how you are doing in the morning and take it easy.
rlwings jim90098
Edited
Yes Jim, relapses can go on longer than 9 weeks. For me it was about 12 weeks before I started seeing a real and consistent decline in relapse frequency, duration and intensity. Now in week 13 or so and relapses are far more manageable and with much less anxiety. Shakiness and all other symptoms lessened considerably ... Hang in there a little bit longer, your days are coming.
jim90098 rlwings
Posted
Morning rlwings,
Thank you for replying.
Have you had the shaking?
I've had it since the start of May on and off.
Did yours come on like an internal trembling and end up shaking like a leaf on a tree on a windy day?
Mine usually is quiet nondescript but yesterday was uncontrollable and it lasted through the night. I'm still shaking slightly now.
Jim.
jim90098 Res35
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Thanks Res and Dawn for your kind words and encouragement.
rlwings jim90098
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Hi Jim,
I'm lucky as my shaking has been minimal but present on and off. Just a 'nervy' feeling in the body with numbness\tingling in hands. Hard to explain. Definitely neurological in nature. Sounds like your shakiness is pretty severe. I feel for you as this disease can be all over the place with it's crazy symptoms.
My experience has been ringing in the ears, dry mouth and severe anxiety especially when I try to sleep at night. Along with weird dreams and brain-fog. I lost swallowing for 10 days but it's back now. Also warm\cold flashes and itchy skin with rash-like red patches and feeling unsteady and weak when walking. - Began with regular relapses every 2-3 days and slowly became 12-14 days between. Now at at 13 weeks and symptoms have finally reduced in frequency, duration and intensity. Life is livable again! (Fingers crossed, I don't trust this virus!! - Lol)
Hope you continue to recover well.
jim90098 rlwings
Posted
Thank you for your update it's greatly appreciated.
Have you ever had rib pain, which isn't brought on by breathing or movement?
Res35 rlwings
Posted
I've had those weird nervy feelings...Try explaining them to a doctor though...No one , not even the neurologist could tell me what that is.
They are still coming and going for me at week 11.
rlwings jim90098
Posted
Sorry, no, I've never experienced that rib pain issue. I feel lucky that my case, although persistent, hasn't been as severe as many others are reporting here.
rlwings Res35
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Ya, very mysterious things are happening to us. Hopefully we will all recover 100%. It's just going on longer than any of us are used to. I think we need to adjust our recovery time-frame expectations.
Rufio222 rlwings
Posted
I went back to work for the first time today. I had to leave halfway through. Just not ready yet. I am very disappointed, but I take some comfort in that I actually felt well enough to TRY... Hopefully the next try will be better. I am going to try a different doctor as well. Maybe a second opinion will do some good.
george94510 rlwings
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hi all im new to all of this stuff but i started feeling a bit sick 5 days ago my chest felt funny i have had no symptoms of covid yet as i said this is only day 5 of feeling sick i can do pretty much most things just feel sick most of the day well i say it comes and and goes i can still eat has anyone else has had anything like this as im very worried due to whats going on i must sound crazy but im one of them people that over thinks lets the anxiety take over which i know is worst thing to do but its hard not to hope all of you are getting better reading some of the things has helped alot so thanks! i must add that my nan was covid positive for 6-7 weeks she has been negitive for two weeks now can she still pass it on she does get sick still but has defo tested negitive i must add my gramp has been with her too next to her but has not caught it?
beautifulday george94510
Posted
Hi George,
Dont think its possible to pass on covid 19 after all that time, so your nan should be ok.
Best wishes and hope you feel better soon and dont have the virus!
Rufio222 george94510
Edited
Hey George. The weird chest discomfort was the first thing I felt. It was on my left side under my ribs and it was nothing like I ever felt before. I thought I was having a heart attack. Fortunately, ECG and xrays came back normal. I know some others who had the virus with the same substernal chest pain. One had it right in the middle and another on the right side. After overresearching this, the discomfort feels closest to pleurisy or pleuritis, which is inflammation of the lining of the lung, occasionally caused by viral infection. It is supposed to go away on its own, but I have felt it for more than two months now. It's really getting old. I would get it checked out. Getting that xray and ECG early on really helped, just knowing it wasn't heart related.
maciej12002 Rufio222
Posted
Or it could be costochondritis, either way you can use painkillers to help with inflammation.
maciej12002 george94510
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I don't think that she can be contagious any more and maybe your granddad had it already, asymptomatic maybe? It is hard to say.
You can get a virus anywhere and it is very difficult for most of us to pinpoint where and when exactly we got it.
Just to protect yourself check dr marik covid protocol and I would recommend starting with that. It is not going to harm you, but hopefully will help. Just google it.
This is not a medical advice, I'm just sharing some ideas, maybe worth trying.
Wish you good luck and I'm sure you'll be fine.
george94510 maciej12002
Posted
thank you all for the messages im feeing so much better today still no sign of covid so i guess thats a good sign i spoke to my gran and gramp today docs told them she can not pass it as she tested negitive for it so must just be bad timing to get sick but i like to be safe than sorry as i worry to much but i keep checking everything for the virus but its all good i do hope you all get past this horrible thing i watch the news alot its sad to see everybody suffer will update if any new signs come to light thanks again hope you all well x
gail28154 Rufio222
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Are you on a phased return to work ?
Im dreading going back to work. Ive been signed off work by my doctor until Sunday , but i dont think im going to be in any fit state to go back to work anytime soon! I still have fevers ( feels more like hot flushes ) and my chest pain is now radiating around to my back but is slightly less intense at the front. I feel ok for a while in the morning then come lunch time feel rough and drained. Still having trouble with breathing at night though!! however heart palpitations seem to have calmed down for now. I just dont know how to explain it to work though, how do you explain to them that your having all of these weird symptoms? anyway going to speak to doctor again on friday
Hope you get some answers soon, im hoping to get my cardiology appointment through soon !! just awaiting test results from my 24 hour ecg and have a treadmill test next week !!
Rufio222 gail28154
Posted
I will be off at least another week. My job has been very good about giving me the time. I told them I am not ready and they just marked me out and said let them know if I need anything. They just need a doctor's note to justify it, but after seeing me yesterday, nobody believes I was faking.
Rufio222 maciej12002
Posted
Yes this new doctor just mentioned chostochondritis. It was so good to have a doctor actually have a suspicion of what it is! She even did a magnetic pulse therapy on my chest which is supposed to help. And gave me some natural immunity boosting supplements. Even just having a doctor finally telling me to do more than just rest and stop worrying made me feel so much better. I hope this all works!
maciej12002 Rufio222
Posted
How about Ibuprofen for that? It should help with an inflamation.
Rufio222 maciej12002
Posted
Doctor did not mention ibuprofen, but it looks like that is a widespread treatment for it. I will give it a shot along with the supplements as needed.
maciej12002 Rufio222
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It did help me in the past, that's how I know that's been used.
john48478 Res35
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i am on week 11 with tingling problems i get them in my hands and in my cheeks just under my eyes that make my legs go like jelly! if you find out what they are please contact me as its scary and being going on for so long!! so relived im not alone with this!
Rufio222 john48478
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Hey John, glad you found us. Have you seen a doctor yet? I haven't experienced the neurological symptoms like that but some others here have. It is far more common than is being reported.
john48478 Rufio222
Posted
hello, yes its a very scary experience that you just seem to deal with as you get used to it, i have been doctors a good 5/6 times been given 3 different antibiotics and 2 steroid things that seemed to do nothing, any advice to help with symptoms exscpecially the breathing side?
Rufio222 john48478
Posted
Look into getting a spirometer. It is a plastic contraption for breathing exercises and costs $13 or so.
Antibiotics did nothing for me either. I had chest pain and bad fatigue when I was at my worst. A doctor just put me on some supplements, including Vitamin K and probiotics for immune system bolstering and artemisinin (an anti malarial plant) to combat the covid.
Res35 john48478
Posted
Me too John, week 11 Monday.
Noone, including the neurologist was able to clearly tell me what the tingling is about. It is very disconcerting.
Best the neurologist could give me was that maybe it's similar to migraine aura where the electrical signals in the brain are going a little haywire and causing nerve sensitivity etc. Given Covid causes vascular issues and issues within the blood vessels like migraine it could certainly be that, but all very vague I'm afraid. Truth is, they haven't a clue.
Glad you found us though John. If I do find out more I will let you know!
Rufio222 john48478
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I should add though that doc said I am post viral and just in recovery so should not take the Artemisinin. It is for if I get the rona again.
Res35 rlwings
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Yeah, I thought 4 weeks was long back when I started this forum!🤣
john48478 Res35
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the thing that was most scary for me was the tingling in my cheeks below my eyes! never had anything like it its just such a long process!
john48478 Rufio222
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thankyou for your help? did you get tested for covid then? i always think about doing it but after 11 weeks i start to think it would just come back negative
maciej12002 john48478
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This tests are useless. Their accuracy is only 70% when they are taken 3-5 days after first symptoms. I'm certain that after such a long time it will come back as negative.
john48478 maciej12002
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i think it will too i also have the theory that the virus is gone and its the affects on the body that is leaving you with these symptoms that are taking forever to get back to normal