Debilitating nerve pain, Help!

Posted , 6 users are following.

Since November of 2015, I have had a mind bending painful nerve pain issue. It occurs mainly in the evening and overnight hours, but also happens periodically whenever it wants, even in the daytime hours. The symptoms I am having are severe arm pain in my left arm from the shoulder to the elbow on the backside only. The pain levels range from a 3 to a 10. When it's a 9-10, I experience lack of coordination, dizzyness, my thought process is dramatically reduced. I lose many hours of sleep and when the pain wakes me up, I am awake for

at least 30-45 minutes each time. I have seen my regular doctor and 2 neurologists, and none of them can figure out what the problem is and how to make the pain go away. I have tried everything from cortizone shots, to pain pills, smoking marijuana and physical therapy. The only thing that helps is drinking alcohol as it numbs the pain. When I smoked marijuana, that helped but I can't do it anymore due to my job. I do have peripheral neuropathy, but my neurologist told me they are 2 different things.

0 likes, 10 replies

Report / Delete

10 Replies

  • Posted

    HI! IF YOU HAVE PIEIPHERAL NEURAPTHY THE SYMPTOMS YOU DESCRIBE ARE SYNONIMUS WITH THAT, MAYBE NEED SECOND OPINION. THIS IS A MOST MISERABLE CONDITION AND IT TAKES ALL OF YOUR ENERGY AND DETERMINATION TO HANDLE IT?! IVE BEEN DEALING WITH THIS FOR YEARS AND IT TAKES A TOLL ON RELATIONSHIPS! QUALITY OF LIFE AND HAPPINESS! MY MOST SINCERE BEST WISHES ARE WITH YOU. HUGS ARE COMING YOUR WAY.

    Report / Delete Reply
    • Posted

      Hello Cory, I agree with the above reply. I have had peripheral neuropathy for 10 years and your symptoms sound like mine. Feet feel as though they are walking on gravel all the time, burning, stabbing pains that feel as though someone is stabbing me with a cattle prod, terrible itchiness which wakes me up at night, numbness the same as when a local anaeshetic is wearing off . Over the years it has travelled up both legs which are now numb and cramping when I walk.I have started to get painful cramps and shooting pains in my arms and hands. To live with all this, I turn my mind off it and try to ignore it and I find it helps.I also use a cream authorised by my doctor ,on my feet at night.

      Amitriptyline HCL 5%, Lignocaine10%, cream 50%, plus another ingredient I can't quite read the name of...Clondine HCL 0.2%.

      If were you ,I would certainly see another doctor, one who specialises in nerves.Good luck!

      Report / Delete Reply
    • Posted

      Thanks for the tip about the foot cream, I will try that. I have all of the same symptoms of the regular super problems that always occur with my neuropathy. That alone I am aware will never be fixed, hence the $10,000 in stem cell treatments that did not take, trust me Iv'e tried everthing under the sun for that card Iv'e been handed. But as I mentioned in my origional post my issue besides the regular neuropathy issue is specificaly my left arm nerve pain. It is the only reason for my question on this blog, I am in search for a possible answer for this issue as it is ruining the quality of my life way more than my "regular" nueropathy has already caused me. Thanks though.

      Report / Delete Reply
  • Posted

    Mine is all of my right arm. It feels different from the rest of me all the time. It gets painful; as if it is being crushed.

    It is probably "thoracic outlet syndrome." look it up, study the photos and diagrams. An area under the 1st rib forms a near triangle; vessels of many sorts and nerves (from neck and arm) get squeezed there in some of us.

    I take loades of Gabapentin just to live with it. Still, I'm going back to doc Tuesday -- pain gets so that I cannot stand to write or type or pick up coffee pot. Never sleep on that arm. Never rest head on that wrist.

    Will check back in.

    Report / Delete Reply
  • Posted

    I looked up the symptoms of the thoracic outlet syndrome you mentioned. Very few of the symptoms match my issues, thanks though.

    Report / Delete Reply
  • Posted

    there must be something wrong somewhere in your spine, pinching the nerve, equals pain. seems to me you need an mri, to see , in some cities you can get an MRI for a reasonable price. Ask for a definitive diagnosis, from your doctor

    Report / Delete Reply
    • Posted

      I did an mri in 2016 somtime, it revealed a pinched nerve between my 5th and 6th vertabrae. I was told it would eventually get better and go away. I have just recently seen a doctor that took a full set of xrays of my spine and neck and couldnt find anything? So now I assume my pinched nerve is gone, but my nerve in my arm is still giving me major issues. I'm not a huge fan of any drs diagnosis, still waiting for a difinitive one. Thank you for your imput.

      I'm just hoping someone can read this one day and say "hey, I know what this is", "and do THIS to solve it".

      Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up