Diagnosed with lung Sardcoidosis yesterday

Hello everyone. I'm a 51 year old lady who was diagnosed with Lung Sardcoidosis yesterday.  I've had problems for two years gradually worsening during that time.  During the last 4 months I've had blood tests, a CT scan, breathing analysis and a bronchoscopy resulting in the diagnosis.  I honestly thought I may have lung cancer as appointments towards the end were brought forward readily so hearing I had sardcoidosis was a relief. However, as the Lung Consultant wasn't very familiar with the disease and rather vague, I've researched the web and the forum here and I'm now very concerned I may have under estimated this disease.  I've been prescribed initally with strong steroids being assessed with an appt with the Consultant in six weeks time with a view to reducing them.  As I had a hysterectomy 18 months ago I've also been prescribed tablets to counteract the bone density problem.  Has anyone been in a similar situation and what are your thoughts?

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