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Looking for folks like myself who were put on Diamox/Azetozolomide for years for things like Glaucoma, and in my case what used to be called PTC (PseudoTumour Cerebri), now called Idiopathic Intracranial Hypertension. Was diagnosed in 1991 and have been on Diamox since then. Now looking at rectal bleeding and suspected kidney disease, I am urgently looking for other folks in the same boats as I am.
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Sway melanie10820
Posted
I know I was on Diomox for at least a year and a half when I was diagnosed with IH but I don't remember why I stopped it or if it worked. I did just have surgery because the IH caused a CSF leak in my skull. I'm going through a bunch of test to find out what my neuro surgeon will do next. a stent a shunt, I don't know.