Diet and natural remedies

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Hi, I am a male of 56 years, recently diagnosed with Polycythemia Vera. Trying my best now to find a suitable diet, though my doctor tells me there is no connection between lifestyle (diet) and the outbreak/progression of the illness. I still think it is important what you eat and drink. My doctor strictly forbade me taking Omega 3, Fish Oil, with the motivation that it would create a risk of haemorrhages. But Omega 3 does have some positive effects, for one thing, it reduces or elliminates night sweats. I really would like to hear your opinion on this, isn't taking Omega 3 a question of dosage, finding an optimal balance?

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  • Posted

    If your doctor has forbade taking Oemga 3 , why you fighting him on it?

    Just don't take it!!

    If you don't like what your doctor has told you then look for a second opinion with a different doctor.

     

    • Posted

      Hello Natalie,

      I might be wrong, but I think that Red Dragon, newly diagnosed, is still struggling to come to terms with the new reality and is still thinking "but, but...". Or maybe he is the type of person who naturally questions facts that are presented as the only possibility. I am an analytical sort of person. I am a "but" sort of person. I can understand the need to question things and come to ones own conclusions. 

      Of course, I could be totally wrong. I could be talking tripe. I often do talk tripe.biggrin

    • Posted

      I see your point, Natalie, but I am a bit ambivalent against doctors and western medicine over all. They are masters at obvious things, like bone fractures. When it comes to more delicate matters however, they often stand with no answers. The holistic approach fails them, I think.
    • Posted

      I think you under-estimate the quality and training of western doctors and medicine.  Most research is carried out in the western countries and brilliant advances have come about.  We here do not rely on elephant tusks and rhino horns etc. and complementary medicines as treatments.  These have been well examined in the west and found wanting.  I and many others are extremely grateful to the medical services here for the expertise and skill of medical staff and practitioners.  Isn't it a fact that many students from the east come to the west to gain skills in all aspects of study and training.  If you feel so strongly about western medicine why did you not seek your treatment with the eastern medical services?

    • Posted

      Hello again Red Dragon, 

      Firstly, this website was created by doctors who were working in general practice and that fact,  combined with the fact that most people attend a regular GP's surgery offering standard medical answers, is going to make the bias of most people here in favour of traditional western medicine.

      Seondly, if you go to the home page on this website you will find an opportunity to look at a forum devoted to Alternative medicine. You may find that there are like-minded souls on that forum although the chances of any of them having polycythaemia are likely to be vanishingly small.

      I have no fixed views on either system. We all just try to find solutions and answers in whatever way we can.

    • Posted

      Not sure how this discussion came about, I have no grudge against western medicine. My focus lies on optimizing my health, specifically regarding Polycythemia Vera. If traditional medicin can help me; wonderful! If holistic medicin comes to the aid; amazing! Eastern medical services literally saved my life in the 90's. Tomorrow, my Haematologist team might equally improve my life quality. A forum like this should have an unprejudiced approach and I have no reason to believe it doesn't.

    • Posted

      There is no prejudice on any of the forums I have seen but it should be realised that PV is a very serious and rare disorder and those suffering from it need assurance and facts on how they deal with the illness.

      Alternative medicine and treatments have never to my knowledge, been advanced as any cure for PV and it is well documented that so far, this does not exist.  If a cure existed anywhere then we would all learn of it. The defective gene causing the difficulties was first identified only ten years ago and since then some excellent treatments have been discovered and information distributed, but not an effective cure.  I am sure your haematologist will be aware of all the facts and offer the best treatment available.

      This will only be recommended following certain tests you will be required to undertake, and the treatment offered will be for you only .  PV is a progressive illness and you will need to understand and relate to your specialist in the future.  I quite accept that citizens in eastern countries adopt different practices to those in the west but many of these do not find acceptance here generally.  They have obviously served you well in the past.  I wish you well with your meeting tomorrow and that the outcome will prove satiisfactory.   There is much help and advice to be found on this forum if needed.

    • Posted

      Thanks Angela, seeking an open discussion about this illness is why I am here on this forum. I too try to find solutions and answers in any way available.
    • Posted

      With "tomorrow" I meant in the future to come. Yes, my "haematologist will be aware of all the facts and offer the best treatment available". But this forum is not that place, so when I am here, I will seek other peoples opinions and investigate possible alternative ways of recovery. I titled this thread "Diet and natural remedies", so that is what I will keep talking about.

  • Posted

    My Haemo strongly advised that I stop eatting leafy green veg, and other things high in iron, - after I was complaining of headaches, dizziness and light headidness.

    I like these things so I didn't stop eating them entirely but I try to seriously limit the quantity I eat - and have it more as a treat, than a daily thing.

    • Posted

      Yes, after all, you have to decide how to balance your diet, taking into account good advice from different sources, not only from your Heamatologist. Even after this short time for me, I have heard of at least two or three individuals who managed to stabilize the situation only through the means of a controlled or specific diet. This is certainly interesting!
  • Posted

    I have a theory on what might have caused the mutation of the genes in my bone marrow. I used to buy minced meat regularly from a local store down town. The meat was very affordable with nice taste and texture. However, the meat was imported from Lithuania. Had some small hesitation about added antibiotics but later learned the greater risk actually would be from radiation. After the disasterous Chernobyl accident, the path of fallout went through Belarus and straight up over Lithuania. So, there is a substantial risk this meat was contaminated and that it might have affected me negatively.

    Anyway, are learning now about diets to lessen, possibly heal the radioactive influence. Lemon balm and ginger are mentioned. Also lemon, broccoli, celery and apples. The body continually heals defect genes, in several ways, helping the body on the way will hopefully speed up the process.

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