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Do FBC levels vary with Secondary/PV

Posted , 4 users are following.

jessie2150
jessie2150

Hello again.  So far all I've done here is ask questions of you good people, but you have so much knowledge and experience on this forum so I hope you don't mind..

Do blood count (hgb/hc/platelet etc) levels go up and down with any type of polycythaemia (always above normal but changeable)?

Thanks for any help.  j

 

0 likes, 8 replies

8 Replies

  • miranda98
    miranda98 jessie2150

    Posted

    Yes, they fluctuate all the time, and may not always be above normal, depending on any blood you have lost, for instance through menstruation.

    Mine varies between high normal and slightly above normal, because I have heavy periods.

  • 1958_pele
    1958_pele jessie2150

    Posted

    Hi Jessie I think primary and secondary polycythaemia only relate to red blood cells whereas polycythaemia Rubra Vera can affect red blood cell,white blood cells and platelets.
    • jessie2150
      jessie2150 1958_pele

      Posted

      Hi pete.  Thank you for replying.  Would that mean the platelet count should (in primary & secondary) stay relatively level?   j

  • miranda98
    miranda98 jessie2150

    Posted

    My mistake, 1958 pele is correct. I missed the part where you mentioned it was Secondary.
    • jessie2150
      jessie2150 miranda98

      Posted

      Thanks miranda, I haven't been diagnosed yet but trying to become as informed as possible.

  • keith28441
    keith28441 jessie2150

    Posted

    Hello Jessie

    With PRV, platelet and white bloodcell counts can increase as is the case with me but not all PRV sufferers experience this. With Secondary Polycythaemia only the red blood cells are affected. Levels will go up and down with the treatment you receive. For example, after I have received venesection ,my red blood cells, HCT and Hb levels go down but my platelets continue to increase.  Following the venesection, my red cells will start to increase again and once my HCT level reaches 0.45% , I will have to have another venesection. My Haematologist is also suggesting Hydroxyurea in addition to the venesection now in order to better control my platelets.

    Hope this helps

    Keith

    • jessie2150
      jessie2150 keith28441

      Posted

      keith thank you so much for explaining that.  I find this is the only place I can get answers about polycythaemia, I'm beginning to think I shall know more than my doctor - but then he doesn't seem too well informed!

      I am so grateful to everyone that has replied to my many queries.  I've my 3rd appointment with general doctor this week when I'm going to ask to see a haemotologist to get some specialist investigation hopefully and all your replies help give me confidence that I'm doing the right thing.

      Best wishes

      ?jessie

       

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