Do I have Idiopathic intracranial hypertension?
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I have been to a Neurologist, pulmonologist, cardiologist, endocrinologist, rheumatologist, gastroenterologist, immunologist, ENT. I am experiencing,
Head pressure that has never gone away, it is always there 24/7 for close to a year now. At the beginning of this 2020 it wasn't that noticeable but towards July and august of 2020 the pressure has been bad and sometimes debilitating. I have brain fog, and have trouble speaking and thinking and remembering things. I have occasional tinnunitis. The pressure in my head seems to have spread in my eyes and ears now. It can also keep me from sleeping. I also have bad fatigue and a feeling of muscle weakness all over my body. And even though I am now gluten free because of a celiac disease diagnosis, I am still having gastroentestinal issues. I am often light headed and dizzy. The thought of standing up is very tiring and I can often not go on walks. I can't get a job and I can't go to school at the moment.
This head pressure has started ever since July 2019 when I got diagnosed with hypothyroidism and the fatigue started then as well. However it has become strong and very noticeable since July 2020.
My trouble is I have had a brain mri, heart ultrasound, heart mri, 2 chest ct scans, chest xr, been to the ER twice, I have had abdomen ct scan, pulmonary exercise stress test, 3 ekgs, 4 covid tests, and 2 endoscopys, and there has been nothing very noticeable except an ulcer and celiac disease.
I am currently seeing a chiropractor just in case something is getting impinged and is causing CSF buildup. I am getting my neck stretched with a cervical traction machine and getting adjusted, and after 11 sessions I am seeing some improvements and I am able to occasionally and lightly workout. But I am still not doing well. After researching at Caring Medical Florida it seems that CSF buildup can happen when you have cervical instability and something is impinged.
I was wondering if anyone thinks this is idiopathic intracranial hypertension, and if it is worth getting a spinal MRi (because I have read people getting them and finding out nothing). I was also wondering if I should get a lumbar puncture(because I have read of people getting them and finding nothing even though they may have CSF buildup).
There is also a possible correlation between chronic fatigue syndrome and IIH so i may just have Chronic fatigue syndrome with IIH.
Any thoughts would be much appreciated.
Thank you,
Sam.
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