Do you attend Addenbrookes?

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Just wondering how many UK based forum members are receiving treatment at the specialist Vasculitus clinic at Addenbrookes?

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16 Replies

  • Posted

    Hi Dave

    must admit that I'm fortunate to live close to Cambridge and Addenbrookes is my local Hospital otherwise I'm pritty sure I would never have made it through my attack I suppose you call it back in Feb / March still very new to it all and getting my head round things.

    I did go to the Vasculitus Group thingey in Cambridge last Weekend and found that helpful to chat with other affected people.  

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    • Posted

      Hi

      I have a 2/12 hour drive to Addenbrookes but it's worth it. Spent some 15 years being "managed" by Rheumatology depts in various hospitals - they just did'nt seem to get it. Guess I''m keen to bang the Addenbrookes drum as I see posts from people (can't determine if they areUK based) who are not getting any help from their GPs

      Cheers!

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    • Posted

      can understand that, my gp was treating me for pneumonia then I ended up in A&E and missed March but still here because of where I went and the fact that they know about Vasculitus
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  • Posted

    I'm based in the USA, I see a Rheumatologist and then other physicians as necessary to treat other body functions as necessary
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    • Posted

      Thanks Linda

      Hope your care is good? I'm trying to see how many UK forum members are aware of the existence of the worldwide centre of excellence for Vasculitus based at Addenbrookes Hospital in the UK

      Thanks

      PS There is a Dr Peter Merkel working out of the Perelman Center for Advanced Medicine

      in Phil. Top guy for Vasculitus in the world.

      Good luck!

      Dave

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    • Posted

      Hi Dave, Im newly diagnosed and I wonder if yoiu know of anyone in Ireland who would be good. I'm currently waiting to see a rheumatologist in the mater hospital as they diagnosed me. Do you think it'd be worth it trying to be seen in addenbrookes if I was willing to go private?

       

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  • Posted

    Hi. I've just been diagnosed with GPA and I drive 1.5 hours to go to Addenbrooks. They are brilliant. Not sure of how this disease will pan out for me but I'm responding well to initial treatment and hope to continue with a normal life.

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    • Posted

      Yes he's my consultant but I saw one of his team last time. I'm back in to clinic on Tuesday and treatment.

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    • Posted

      Ah, that's good. I'm actually transferring back to my local rheumi in Lincoln. I can't tolerate the journey etc. Last time was 2 hour drive there - 2 hour wait - 2 hour drive back.Too much for my broken spine. But, wish you well.

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