1. Community
  2. Chest and lungs
  3. Sarcoidosis

Do you sweet lot at night ?

Posted , 3 users are following.

mlotfi
mlotfi

Hi,

I am new in this forum, I was diagnosed for sarcoidosis in 2007, I have two big lumph nodes in my lungs, I never took any medecine, want just to know of sweeting lot at night has to do with sarcoidosis.

Thanks.

1 like, 10 replies

10 Replies

  • Nickademus
    Nickademus mlotfi

    Posted

    Massively sweat at night, its part of the condition. Night sweats are very common. Its also common not to be able to regulate your body temerature properly. When I get cold, I go really cold and struggle to warm up. I can get cold in a warm environment. But if I get too warm, at at time I over heat and pour with sweat (horses sweat, ladies perspirate!!!!), especially my head so my hair gets soaked. 

    I will say my night sweats have decreased over the last 2 years. I dont know if that is because im medicated or what. When they were severe I would need the bed changed and take a shower. Im afraid its just part of having sarcoid

    Best wishes 

    Nicola

    • mlotfi
      mlotfi Nickademus

      Posted

      Thanks Nicola,

      at night the back of my head and my neck sweat lot.

      and I always have headache, especially my back head, sometimes I can't sleep, I have to stay sitting up or standing up, I don't know if this is related or not.

  • Nickademus
    Nickademus mlotfi

    Posted

    Yes my neck sweats alot too. I rarely get a headache due to the fact I take ibubrofen and co-dyramol as part of my medication. When I do get a headache its usually because Im dehydrated. If you are losing water through sweat you are becoming dehydrated. I have a drink at the side of my bed. Not saying that is the reason for headache but its worth a try

    Nicola

  • frustrated61
    frustrated61 mlotfi

    Posted

    Hi Mlotfi ~

    I have had sarcoidosis since 2005.  I did go into remission for a short period but it came back with vengence.

    I tend to sweat a lot like Nicole said.  In the beginning, the sweat was so terribly bad that I'd get ready to go some where and just that simple task would heat my body up so much that my hair would become soaked liek I just walked out of the shower.  It's toned down some but I still have my problems.

    When I was diagnosed, it was via surgical tissue sample though my neck down to the lungs and lymph nodes.  We first thought it was cancer but sarcoid was the dx.  I was put on heavy dose of steroids for almost 2 yrs.  I was then put on Plaquenil and Methotrexate for another year.  

    If you  aren't already seeing a Rheumatolgist, it might be time to see one soon.  They are the doctors that usually take first step in helping you.  If it's spread to the lungs there's another specialist to see.  But to start, a Rheumy is what I would suggest first.

    Hope you're feeling better soon.

    Frustrated

    • mlotfi
      mlotfi frustrated61

      Posted

      Hi,

      Me too I was diagnosed via surgical tissue sample though my neck down to the lungs and lymph nodes, my doctor told me to not to take any medicine as advice, he said the stroids that sarcoidosis patients have more side effects, so since that time 2007 I never took any medicine, just Telenol for headache.

    • frustrated61
      frustrated61 mlotfi

      Posted

      Hi Mlotfi ~

      Your doctor is a wise one.  I did have more secondary problems from the steroids.  For one, I gained 75 lbs in a few months!!!  After I stopped the steroids, I lost over 85 lbs w/o dieting or anything it's just what that nasty, poisonous medication!  

      I wish you well and hope you stop that sweating , it's awful.

      Hope to keep in touch,

      Frustrated

    • mlotfi
      mlotfi frustrated61

      Posted

      Hi,

       what we eat is very important, try olive oil and honey every morning and evening, they are very good, stop eating outside, cook for yourself.

       

    • frustrated61
      frustrated61 mlotfi

      Posted

      Hi Mlotfi ~

      I hear you regarding eating well.  I drink 1/2 cup of red wine vineager and 1 tsp of honey mixed together...one in the morning and one at night.  Tastes quite nasty but it's so good for you.  My  father in law was the one who introduced this to me a long time ago and he live to ripe ole' age of 96.  I use olive oil in many of our dinners.  

      As far as eating outside, we rarely  eat out.  Either my husband makes his italian dishes or I make middle eastern gifts   I'm not middle eastern but hummus, sarma, greek yogurt etc...I love love that kind of food.

      Thank you,

      Frustrated

    • frustrated61
      frustrated61

      Posted

      Mlotfi ~

      The weight gain wasn't from over eating, in fact, I was so ill that I couldn't eat.  It's that nasty poison drug is what I gained weight from.

      Again thank you,

      Frustrated

  • alan_77591
    alan_77591 mlotfi

    Posted

    I am not the patient, but I have to care for my wife who has become more debilitated and now needs a wheelchair, along with many other symptoms.

    She was first diagnosed approx. 45 years ago, by taking a very small dose of Prednisolone, 2.5mgs a day it kept it at bay for many years, over the last 5 years many things have happened to her, they include the sweating, heart ,arrhythmia, breathing problems, lack of energy, her hearing has deteriorated, urnery infections and skin rashes, my advice to anyone with this problem is, to make sure your doctor knows and understands that you have Sarcoidosis so that they don't just look at the symptom you have. 

    We have spent many hours at hospital trying to solve the various problems my wife has had, if they had looked at Sarcoidodis in the first place she possibly would not be in the poor stateshe is in, she has undergone operations to rectify things that weren't really the problem, all because nobody understood Sarcoidosis. 

    Make sure when you have to visit your Doctor that he/she understands that you have Sarcoidosis and to look there before going on to other causes.

    Good Luck and look after yourselves

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.