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Greetings from the US. My daughter was diagnosed with Wegener's 18 months ago. Her affected area is her kidneys. She completed cytoxan and steroids and was deemed in Remission last November of 2015. Over the course of the last 6 weeks she has been hospitalized with pneumonia. Since the pneumonia her Lung capacity has dropped to 51%. She has had a brochoscopy, CT scan, and labs to confirm that she is still in remission. She has pain in her chest and back that the doctors cannot explain, nor the decreased lung capacity. Has anyone seen or have experience with this?
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