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If you have read my profile, my name is fraser, i have Wegeners or WG (even though the name has changed)
And the first thing is i am not scared anymore, i just want to say that as i have had the condition for 6 years. I was 15 when diagnosed i am now 21. it has been hell!
with no one to turn to and no one to understand as in a 15 year old no one knew what to do?
I started out with very bad joint pain and rashes on my ankles, then it moved to lung failer and kidney failer after a biopsy to make sure it was the condition. I was stablised very quickly 2 weeks in fact from 10% lung capacity to recovered (to what i can be). It has lead to stresses to losing jobs to losing friends! to falling out with everyone because you dont know whats going on and your scared.
Not anymore i have had a lot of help over the last 3 years especially, i tell you what made me have courage and inspiration, a young lad called Stephen Sutton (look him up if you dont know him) and the army. I always thought to my self they have had their legs and arms blown off and they carry on so can i! and things like that kept me going untill now i embrase my condition in a way. I am brave i am strong and i will get through this.
Which leads me to this, if you want to talk to anyone that you feel you can't please drop me a line because, i know, and i understand.
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