Posted , 2 users are following.
Just been diagnosed a week ago waiting see respiratory next week just had my ct scan results and it says extensive mediastinal lymphadenopathy with lung changes highly suggestive of sarcoidosis what does that mean any1 help
0 likes, 5 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
tyagi emma64224
Posted
Hi Emma. It means the lymph nodes in the middle of your chest are swollen. One of the causes of this is Sarcoidosis, where you get lumps in your lungs which MIGHT cause a bit of scarring. With luck, you will have the acute form which will go completely with treatment. But sometimes this can be ongoing ( I've had it for over 20 years) and the symptoms can vary from mild to serious. Talk to the specialist and get treatment started, and hopefully you'll be OK. Lots of info and support on this site. Good luck!
emma64224 tyagi
Posted
Thankyou so much for your reply I was rushed in hospital 18 month ago with chest pain this showed on X-ray but they failed too inform me sent me home then it's just happened recently same thing but showing more now they investigating why I wasn't informed consultant was not happy at all just hope they've not left me too long for it stay in so worried n been really ill and tired going dizzy n been told it's anxiety and pulled chest knee there was something more just glad they going do something now don't know anything about it
emma64224
Posted
Or what treatment just looking at everything I can find I'm so upset they forgot inform me but glad I'm not going crazy as that's how they've made me feel
tyagi emma64224
Posted
Can quite understand you being anxious if you're not having things explained to you. And anxiety WILL make you feel worse. It is quite usual to wait for x-rays to need careful checking, and it may take a simple biopsy to confirm Sarcoidosis. The standard treatment is a course of steroids (Prednisolone in UK, Prednisone in USA). Not nice, but better than cough and breathlessness, and if you're lucky they might clear it up. Take things easy- that helps too !
emma64224 tyagi
Posted