Feeling really unwell shortness of breath tightening of chest headaches sore eyes

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Just been diagnosed a week ago waiting see respiratory next week just had my ct scan results and it says extensive mediastinal lymphadenopathy with lung changes highly suggestive of sarcoidosis what does that mean any1 help

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  • Posted

    Hi Emma. It means the lymph nodes in the middle of your chest are swollen. One of the causes of this is Sarcoidosis, where you get lumps in your lungs which MIGHT cause a bit of scarring. With luck, you will have the acute form which will go completely with treatment. But sometimes this can be ongoing ( I've had it for over 20 years) and the symptoms can vary from mild to serious. Talk to the specialist and get treatment started, and hopefully you'll be OK. Lots of info and support on this site. Good luck!

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    • Posted

      Thankyou so much for your reply I was rushed in hospital 18 month ago with chest pain this showed on X-ray but they failed too inform me sent me home then it's just happened recently same thing but showing more now they investigating why I wasn't informed consultant was not happy at all just hope they've not left me too long for it stay in so worried n been really ill and tired going dizzy n been told it's anxiety and pulled chest knee there was something more just glad they going do something now don't know anything about it

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    • Posted

      Or what treatment just looking at everything I can find I'm so upset they forgot inform me but glad I'm not going crazy as that's how they've made me feel

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    • Posted

      Can quite understand you being anxious if you're not having things explained to you. And anxiety WILL make you feel worse. It is quite usual to wait for x-rays to need careful checking, and it may take a simple biopsy to confirm Sarcoidosis. The standard treatment is a course of steroids (Prednisolone in UK, Prednisone in USA). Not nice, but better than cough and breathlessness, and if you're lucky they might clear it up. Take things easy- that helps too !

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