Fibrosing Alveolitus

My dad passed away January 2004, he was diagnosed with this fatal disease two months previous. He had always been a fit man and played regular sport. He had apparently had the disease two years previous and instead of the doctors calling him for follow on appointments, his case was filed. He started proceeding to sue before he passed but unfortunately we lost the case because of lack of evidence and lack of knowledge about this disease. He was finding it increasingly difficult to catch his breath and was admitted to hospital. He asked the specialist to use him as a guinea pig to help with the research and even asked for a lung transplant but because of his age 63 he was considered too old. He seemed to get better and was discharged but a week later his shortness of breath to much to bear and again he was admitted. His condition deteriated rapidly and he was put on oxygen 24 hrs a day as well as steriods and other medication. He was eventually given morphine to help, it got to the stage where he cldnt get out of bed as it would cause his shortage of breath. He died just after christmas. It was awful and painful to watch him knowing that there was nothing that anyone could do for him.

I pray that one day there will be a cure for this fatal disease and that there will be more information for patients and families in order to understand fully the seriousness of this situation. I also hope that regardless of age each individual will be entitled to the same help and medication in order to overcome the disease.

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