FND

Posted , 3 users are following.

Hello, I'm sorry for a late reply or two but I've had quite a few problems and a long time in hospital, OK has anyone had or heard of a condition called FND,

I've been pulled prodded and poked and a few needles as well,

Apparently it's similar to sarcoidosis as it can affect any part of the body and like sarcoidosis it can mimic strokes to a degree and also cancer as well,,, but to us patients the symptoms are very real and even more painful, its basically a condition that puts us in a lot of pain,,,, but when we are tested by our doctors there's nothing there and all the tests are negative,,, they call it (for want of a better phrase) we are not wired up right.

Please feel free to add your own comments as I'm puzzled, or as my dad said,,,,, if you can't dazzle them with diamonds then baffle them with bulls**t lol,,, good old dad

0 likes, 2 replies

2 Replies

  • Posted

    Hi Peter, 

    Yes, I have been diagnosed with FND for the past four months now. http://www.neurosymptoms.org/ is a great site for understanding your symptoms.  You may find if you're on facebook  FND HOPE is a good group to join also, many people will talk through your symptoms and share their experiences.   

  • Posted

    hi i've just come across this post while looking for advice myself on fnd 2 yrs ago but just wondering how its going with it & any advice on the matter cause im new to it all ?

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