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FOR all those with SARCOIDOSIS.......

Posted , 4 users are following.

rachelhawley
rachelhawley

I was invited to a Facebook page called SARCOIDOSIS and it has been wonderful.

Almost 6000 people on there and everyone just talks and helps each other.  I find it easier then going on here.  Please find it and put in a request.  

 

0 likes, 9 replies

9 Replies

  • magdafloasiu
    magdafloasiu rachelhawley

    Posted

    Hi Rachel,

    thanks for letting us know!!! I just checked and there are two groups called "sarcoidosis." One is spelled "Sarcoidosis" and it appears to be a closed group. I already sent them a request to join the group. The other one is spelled "sarcoidosis" and is a public group. Would you please be so kind to let me know which one is your group?

    Thanks!!

    Magda

     

    • magdafloasiu
      magdafloasiu rachelhawley

      Posted

      Yes, I've been accepted and already posted my questions there. Thanks for getting back to me. You rock!!! smile

    • jean68563
      jean68563 magdafloasiu

      Posted

      Hi Magda l have been trying to find this group on Facebook I have put the Sarcoidosis word in in different ways no luck. Is there a symbol I can look for. Or the best way to find the site any info I would be grateful x
    • Katlis
      Katlis jean68563

      Posted

      I can't get on the fb either but anyways I had my ct scan done Aug 24 and it showed my lymph nodes are larger than last scan June 8 even after being on prednisone 50 mg daily now I'm going to see another specialist in Hamilton Ont on the 8th and I might have to go through another biopsy has anyone heard of thier lymph nodes getting larger

    • rachelhawley
      rachelhawley jean68563

      Posted

      Try using all caps.

      If you can't find it look for me on FB send me a friends request and I will tag you

    • rachelhawley
      rachelhawley Katlis

      Posted

      Try using all caps.

      If you can't find it look for me on FB send me a friends request and I will tag you

      Rachel Hawley

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