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I've read a lot of stories here but wonder did anyone have experiences such as mine. I was hit by an express train called WG.
I'm 53 and retired on ill health. I was suddenly very ill in 2005 having been FINALLY diagnosed WG. I had been healthy all my life.
I spent seven-and-a-half months in hospital. I was in Intensive Care for three-and-a-half of those months - in a coma for about a month. I became paralysed from the neck down with gross myopathy (lost 4 stone) and had a long rehab with horrendous physio. I'd had kidney failure requiring dialysis (I was born with only one kidney), heart failure, end-stage lung disease, liver damage, collapsed lung (twice), pneumonia, pleuresy, C-diff and other things I forget now. I was on my back for 6 months paralysed with a feed tube, catheter etc. Horrendous! I had numerous blood transfusions.
The most upsetting thing is that my GP (after 4 months of varying unresponsive symptoms) sent me to be admitted to hospital 2 weeks before I actually was admitted. I was turned away by the hospital - if I hadn't been, I would have got my treatment in time to stop the damage the disease did to me.
I was called \"The Miracle Man\" by ICU. My wife was told three times that I was dying. I was told once. I made a will. Scarey stuff!
I now live with my damaged lungs, kidney and muscles but am grateful to be alive against all the odds!
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