Gardening Activate Mast Cell Activation????
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Has anyone had Activation from gardening outside? Any tips or clues on the cause?
1/2016, traveled to Mayo Clinic & diagnoised with Mast Cell Disorder, CVID, Autoimmune Urticaria..........lots of new meds H1, H2, H3 Blockers, IVIG......however, my hometown doctors ask me how to spell my conditions. Ugh....
3-4 weeks ago I started an organic garden. Peat Moss, Organic Compost, organic vegtable soil & plants. 3 days later unable to get out-of-bed, felt like the flu.
-Extreme Fatigue, Muscle/Joint Pain
-Deep Bone Pain Hips, Lower back
-Shortness of Breath, Dizziness, feeling faint
-Nausea, vomiting, diarrhea
-Crushing Headaches
-Edema
-Heart Palpations
-Cold Sweats
-Mentally Impaired (Comes & Goes, confusion)
1 week ago, Rheumatologist sent me to Er, admitted for "Sinus Bradycardia & Left Ventricular Hypertrophy".
Finally home, still on bedrest, but now developed Severe oral Thrush mouth/throat, 2 days later a burning sinusitis, rash on arms & torso. Doctors totally perplexed. Any thoughts would be appreciated! Thank you!
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StridAst Aphra
Posted
It's definitely plausible that it could be the cause. Multiple possible routes could cause it. The most obvious would be an allergy to anything you came in contact with. (Pollen, or even mold in the potting soil as an example) allergies are something seperate from mast cell disorders, but a mast cell disease neither makes you more or less likely to have an allergy. They are something seperate from mast cell triggers, however any allergy can still act as a mast cell trigger.
Other possibilities can be the excercise of gardening, or sun exposure, or temperature. It could also be you simply caught some kind of infection, as bacteria or viruses can also trigger degranulation. (In which case gardening would be fine)
As far as the oral thrush, are you currently taking any oral steroids? Asthma inhalers, swallowed inhalers for EoE or that kind of thing?
Aphra StridAst
Posted
No steriods, but I am on Biologics, Plaquenil, Methotrexate, and the H1, H2, H3 blockers. Luckily, I've been off the steriods for over 6 months. Physical Exertion & heat have been triggers, but it was an easy breezy day.
Worst part of all, my ER docs & Hospitalist had to research what Mast Cell Disorders were & still were confused.
I guess I feel if I knew the trigger, I could have more control over what seems to be an unpredictable condition. I journal, but all I know for sure are illnesses, exertion, heat, and tomatoes.
Vaxxine Aphra
Posted