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Gout still a pain

Posted , 4 users are following.

glenn_76104
glenn_76104

Hi I was diagnosed with PV in Oct and have suffered with gout constantly since. I am hydrocarbmide and was put on a course of steroids which seemed to work and so was whined off them, I've only been off the steroids for 2 days and the gout is back any advice

0 likes, 3 replies

3 Replies

  • margo82957
    margo82957 glenn_76104

    Posted

    Hi

    do not know much about gout,but Iknow we must never get off our medications. What areyou taking for the PV? I am on Jakafi. Reply back if u can.

  • harrishill1
    harrishill1 glenn_76104

    Posted

    Hi glenn. I was also diagnosed with gout at the same time as being diagnosed with PV. They seem to come together. I have been on allopurinol since then. It works pretty well (for gout), except that I get tophi which are caused by gout and cause small sores that bleed all the time and are difficult to heal. I don't drink alcohol, and eat foods that are ok with gout. Hope you have a better time of it. best wishes, harrishill

     

  • peter98873
    peter98873 glenn_76104

    Posted

    Hi Glen, 

    I know only too we'll how painful gout can be.  I have suffered from hereditary gout for as long as I can remember.  I also know that gout can be a symptom of polycythaemia and its treatment.  It is caused by an over supply of uric acid in the blood.  I was affected by gout before I was ever diagnosed with PV.  Allopurinol has been my treatment for many years effectively dealing with this problem.  I would not be without it.   I cannot recall when I was last affected.  Good luck.

    Peter.

     

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