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Hair Loss

Posted , 5 users are following.

bernard42121
bernard42121

I have been diagnosed with polycythaemia JAK2 since the beginning of the year and have experienced most of the associated symptoms.  However, I have noticed that I am losing my hair at a steady rate which I find quite alarming.  I know I am 80 years old but have always had a thick head of grey hair but it is now noticeably thinner.  Has anyone else experienced this please?

0 likes, 5 replies

5 Replies

  • monneywese
    monneywese bernard42121

    Posted

    Hi Bernard -

    No, I was diagnosed with same thing in July, but do not have hair loss (thankk heavens!).  What medications are you on?  That may be the answer.  I do not take medications, and so far have not done phlebotomy. 

    Hope you are otherwise doing well - M

     

  • geoff-mpnfamily
    geoff-mpnfamily bernard42121

    Posted

    Hi bernard, hair loss is only common in Polycythaemia Vera if you are on chemotherapy such as 'hydroxycarbomide'.

    However there have a few individuals including myself who has developed some mild thyroid problems which can cause this too. 

    It is always wise to seek professional medical advice. 

    I hope the answer is simple and rectified soon. 

    Geoff (I've had PV for 6 years) 

  • harrishill1
    harrishill1 bernard42121

    Posted

    Hi, Bernard. Yes, I'm a woman, and have been noticing steady hair loss. I think since I am on Hydroxyurea, it may lower my blood so much, I may be lacking vitamins. I don't want it to interfere with my treatment, but I started taking  a multiple vitamin that contains folic acid. Folic acid loss may cause hair loss.
  • anne1609
    anne1609 bernard42121

    Posted

    Hi Bernard

    I also had thinning hair but had thyroid problems as well as polycythaemia JAK2.  Had one side of my thyroid taken out and am taking thyroxine 75gm per day and I have noticed that my hair is now growing back. I would suggest asking the doctor for a test for thyroid problems to see if that could be the reason for the thinning hair.

  • bernard42121
    bernard42121

    Posted

    Thank you to everybody who have replied to my hair loss problem.  It has been very useful and I shall take advice and visit my GP for a blood thyroid test.
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