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I am writing this in celebration of surviving a diagnosis of wg for over 20 yrs. s 29 and was so scared of not living to see 30. It all started in august 94. My husband and I had just moved to his childhood hometown. For me it started in my eyes and with joint pain in my hip. I went to the dr and he treated me for pinkeye and after a week he saw me again and since my eyes were still bloodshot he accused me of not listening to him and tand wearing my contacts even though he told me not to he told me that he refused to see me from then on. I then started to experience other symptoms such as being able to keep food down, constant coughing shortness of breath and extreme aching in my whole body and fevers spiking fevers over 103. I went to the other dr in the office many times but was told I was suffering from some virus.
in october I went to visit my mom. She noticed that I was suffering with something as I had lost 40 lbs and looked as though I was on deaths door. After spiking a fever she encouraged me to go to the hospital and I didn't refuse.when I got there the dr asked why I was there as by the time we got there my fever was normal. I told them that about all my symptoms and added that I had now been coughing up blood also. The dr listened ti my lungs and said they sounded clear but with my symptoms he decided to do a chest xray. My xray showed a lot of white cloudiness and infiltration. He diagnosed me with pneumonia. He wanted to admit me but I told him that I wanted to be hospital ized at home. He gave me my xrays and meds and told me to go to the nearest hospital asap. I returned home and went to the hospital and saw the dr who told me that I was suffering from a virus he told me to go home as he couldnt do anything in the hospital for me that I couldnt do at home. Four days later my husband saw that I was getting worse and not better so he rushed me to the hospital. This time the dr who had refused to see me did and he hospitalized me for pneumonia. I was there for a week then released no better than wwhen I had come in. After 3 wks passed and no change he referred me to aspecialist who admitted to the hospital in springfield and 3 days of hospitalization and a lung biopsy and a canka test he diagnosed me with wg. My recovery included treatment with prednosone which made me feel way better and made me bounce back quicker than I ever tho ught it would I was also prescribed cytoxin which I was on for 18 mos. After 3 yrs of recovery I returned back to work and within 1 yr I was verified to be in remission
here I am 20 yrs later and still inremission and so thankful that I am still here. I know I have god to thank for that I got to see my only son grow up and start his own family 5 beautiful grand children. For those who are diagnosed with wg I can say my best advice is to live one day at a time and be thankful for it.Recovery is in itself a journey that is long but with love and support it gets better with each passing day.
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