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Hello all I was diagnosed with IPF 20 months ago. Am married and have grown up children. A t the time I decided to keep it to myself and told family there was a problem and consultant was just meeting me regularly to ensure I didnt get worse. Last three visits have shown no deterioation . I am on OFEV with no side effects. Maybe my family know but they just ask how I am, which is what I wish for. . I am trying to keep my life as normal as possible and have gone on regular holidays etc and am really happy that no one is fussing. . I have spoken to my consultant and he said it was up to me who knew at this time and suggested family probably know and accept that I dont wish to have my life as normal as possible. I am also making every effort to have all my affairs in order for my lovely wife should something happen quickly to me. Any suggestions or ideas. I am 66 years .
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