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I was diagnosed 1 year ago went my pituitary glands swelled to twice their size. I heard it was very rare to present this way. Anyway I went thru all the biopsies and tests and nothing internally has been effected so far. I no longer have the extreme fatigue but I am having a lot of joint paint. The doctors have told me I don't have sarcoidosis anymore but after reading some of the posts I am so confused. Is this chronic ? Everything I read is confusing too, from this is a common deseaseI to it is rare, etc.
i would appreciate some discussion to help me. Also, did anyone else's sarcoidosis present like mine?
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