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Hello all

Posted , 7 users are following.

sue51195
sue51195

I have recently been told that I have sarcoidosis in my lungs. My cough is driving me mad which I have now had for 2 years. I had a broncoscopy and lung wash 6 weeks ago and have an appointment at hospital this week. 

At at the moment I am really struggling with cough and feeling so uncomfortable as I think I have pulled a muscle in my right shoulder blade..

any my suggestions to help please.  Feeling very vulnerable.  

Thank you. 

0 likes, 16 replies

16 Replies

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  • Flo1949
    Flo1949 sue51195

    Posted

    I also was diagnosed with lung sarcoidosis last summer after complaining of persistent cough.  I was prescribed a steroid inhaler which has really helped the cough.  Hope you will get relief soon.
    • sue51195
      sue51195 Flo1949

      Posted

      Hello Flo. Sorry to hear that you have also been diagnosed. What is the name of your steroid inhaler please ?

      do you find the cold weather also makes cough worse ?

       

    • Flo1949
      Flo1949 sue51195

      Posted

      Hi Sue, it is Clenil modulate 100 mcg (brown) inhaler on prescription in uk.  No I didn’t notice my cough much over the winter.
    • sue51195
      sue51195 Flo1949

      Posted

      Thank you Flo. I will suggest this to doctor. All the best. Sue
  • m_m_h
    m_m_h sue51195

    Posted

    Hi Sue

    I have also had a persistent cough of two kinds. One is a dry cough due to lung issues and the other is a more productive cough due to a constant nasal drip from rhinitis. Besides being extremely irritating for me and those around me I also pulled muscles and got a sore chest from coughing.

    I was recently given a steroid inhaler called Clenil (beclometasone) and also a beclometasone steroid nasal spray. Both have given much relief from the cough.

    Hope you can get some relief with treatment.

    Mairie

    • sue51195
      sue51195 m_m_h

      Posted

      Thank you Maisie much appreciated. Hope you keep well. Sue
  • Big_Mack
    Big_Mack sue51195

    Posted

    Are you also seeing a pulmonologist that knows sarcoid? Good diet helps 😁 cut back alcohol and if you smoke try and quit 👍🏼 Eat plenty

    Anti inflammatory foods, drink more water per day and add more exercise 😁

    • sue51195
      sue51195 Big_Mack

      Posted

      Hello Big Mack

      he is not experienced in sarcoid so I am going to ask to be referred. Alcohol not a problem and luckily never smoked.  Not a good water drinker. But will put this top of list. Exercise.  I go to gym but struggling at present. 

      Thank you Mac. Keep well. Sue

       

    • camey03589
      camey03589 Big_Mack

      Posted

      The water and less stress is very important so however you accomplish that go for it!
  • david03145
    david03145 sue51195

    Posted

    Hi Sue, when l was first diagnosed with Sarcoidosis and following a biopsy l was prescribed with an inhaler called FOSTAIR, its a steroid inhaler hich certainly has taken the cough away for me. And is available on prescription in UK, so ask your doctor to get you taking it. I simply do not have the painful cough any more and the cough would have me on the floor in painful fits at the beginning of my journey with Sarcoidosis.

    I wish you well

    Kind regards

    David.

    • sue51195
      sue51195 david03145

      Posted

      Thank you David for your advice. 

      In wish you well too and a little luck thrown in 

      all the best Sue

    • david03145
      david03145 sue51195

      Posted

      No worries Sue, sometimes it can be a lonely place battling this debilitating condition on our own. Having the opportunity to chat with folks who have also experìenced the symptoms and pains is a great step forward for me too.

      Bon Chance to you too.

      David

    • camey03589
      camey03589 david03145

      Posted

      Amen brother! God speed! You are right on all accounts! But I hope know you aren’t alone helps?
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