Hello. I have been recently diagnosed with plumanary sarcoidosis.

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Started 40mg of prednisone day. Still fatigued yes getting better. I'm looking for a good was to change my old habits and try to start eating Foods helpful for this condition. If anyone has any suggestions I'm all ears this is all new to me.

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  • Posted

    Hi Gee,

    I was diagnosed with pulmonary sarcoidosis in March this year. Started off on 30mgs reduced down to 5mgs. Had to go back up twice due to chest infections but back down to my maintenance dose of 5mgs now. The fatigue does improve but there will be times when you improve that you will have days when the fatigue is there. An antiinflammatory diet is a good one to follow and sugar free and reduced salt too as the steroids cause high blood sugar and can lead to diabetes. They also raise your blood pressure which they did for me and I had to go on a tablet for a bit. Exercise is great. You may not feel like it now but it really does help. Do as much as you're able to do even if its just to clear your head.

    Hope this helps. Feel better soon.

    Polly.

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  • Posted

    I go to Weight watchers to keep my weight down 
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  • Posted

    Lol i need to do this aswell ive been trying to eat better! But i keep getting major munchies!!! I Need some self control!!! X
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  • Posted

    Thank you everyone for you encouragement. It's kinda scary. I feeling better everyday, still get really fatigue tho, but not as much. I did have to up my diabetic meds because of the prednisone.

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    • Posted

      Lol any chance your gettinf the aches with these munchies haha! I swear my whole body hurts sad but i feel better in myself on my 10th week and down to 15mg starting to feel pants again though how are you gettin on

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    • Posted

      Sorry for the late reply. I recently was hospitalized with my blood sugar at 750 😲 from my Dr and I trying to balance the insulin and prednisone (all bad) . Since then my Dr reduced my meds to 10mg. Felt like I was getting all the side effects geesh. My muscles had gotten very weak . I have been walking and pushing myself to strengthen my muscles back up again . I can now climb stairs again slowly but I can do it in my doctor sign me up for physical therapy as well . I blew up like a balloon and my legs were so swollen I could barely walk. So my Primary care physician put me on lasix and that helped a lot. I now my jaw is starting to clinch and my shins are cramping everyday (it sometimes wakes me from my sleep).

      I'm due for another CT scan in the about two weeks and I pray that it show that mine live nose are shrinking because this is very difficult annoying

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