Hot weather

I have made an appiontment to see my GP but it's the 28th July! If I feel any worse I will directly to A&E, I have been taking my blue inhaler over 20times a day and it makes no difference

Hayley x

How come you have to wait until 28th July - that is crazy!!!!

Hahahaha Linda! I know it's crazy! But if you want to see your GP who has dealt with you all along there is a two week wait, otherwise I have to repeat myself then they look baffled and just fob me off with oh well if it gets any worse come back!

But it should all be on the screen in front of them

Also who knows it may be good to see another GP.......this is what I have found sometimes.

I may see someone different if I still feel like I do by the end of the week, as they say change can be good!

That is coo-coo to have to wait until the 28th...you told them you are having a hard time breathing!! it's not like you have a boo-boo on your knee for gawd's sake!  Maybe you can call back and ask if anyone cancels, call you and at that time tell them...well, if I don't show up on the 28th it's because I'm no longer here.....one can't live w/o air...now I would say that but my doctor would see me the next day especially because what I was diagnosed with....I'm guessing the person that answers the phone just goes along with what she's been taught...can you speak with your doctor yourself?  Perhaps that would speed it along! 

It's bad enough to feel miserable because you can't breath and it's hard to even muster up the energy to fight for what's right...but, if you speak with your doctor and get in eariler maybe you can mention that when you call, you have to wait at least two weeks, which you cannot afford to wait that long....he may just tell the staff himself that you need an appt from now on immediately! 

The medical field and insurance people I say what I need and don't budge....after all they are getting paid for their time!!

Well wishes

frustrated

Oh God Haley! I'm assuming it is a ventolin inhaler, yes? If so please be careful. It's supposed to be a maximum of 8 puffs a day and over doing the dose can have the reverse effect not to say you must be shaking yourself all  over the place with the side effects!

I have to agree with Linda that seeing someone else can be a good thing. I actually found that the younger locum doctors were doing their GP training as part of their medical degree so were more 'fresh' and up-to-date on things like Sarcoidosis. I now always ask for the locum when I book an appointment but I wil be gutted when he leaves to go back to the hospital as I will have to break a new one in

I'm going to ring in the morning and get an appiontment for the same day, it is frustrating having to wait but I like the continuity but I am struggling, at least we're due for some thunder storms which will hopefully clear the air and make my life a littler easier!

Ailsa I am shaking! Have slight trembles and feel dizzy, I didn't know it can have a reverse effect I'm learning so much from this forum, 

I am going to get an appiontment tomorrow and I know it will be the locum so fingers crossed x

We just had few day and nights of thunderstorms and it's mighty cool now...yay! I undertand about the continuity...you don't need to struggle...when you do get in, maybe tell the doctor what  you just wrote me and perhaps he'll be compassionate and get your appts at the top of his list (always!)

Take care...and breathe on!!

frustrated

Hayley you always have the option of ringing 111 now. As your breathing is that bad and you have used your inhaler over and above the stipulated dosage to possible detrimental affect, put your health and sanity first! I have had chest pain before and rung them out of hours and they are very good ended up being taken to A+E 3 times! If you are struggling pick up the phone!

So glad you have decided to call sooner, hopefully you will get some satisfaction - let us know.

Hi  did you have any joy when you saw the Hp?

Hi guys. I'm not sure where to post this so that everyone will see it so I will post it here and on the original forum I started.

I'm hoping everyone has now calmed down after the argument and I'm hoping that there are no grudges being held by anyone. I totally missed the argument I'm glad to say but I'm really upset that it happened at all.

I think when people are unwell their emotions are very sensitive too and what is basically a little disagreement can turn into a fully blown fight. I'm sure like me everyone hates arguing because it leaves you feeling stressed, unwell and unhappy. Just what the doctor tells us to avoid. I am aware that some of you are still feeling upset so I'm asking whoever was part of the argument (both sides) to take a deep breath, rise above it and move on. I bet if everyone thought about it they would be wondering how it blew up the way it did.

The forum is for support not arguing. Remember to read your post before posting just incase you have replied in what might be though 'an agressive manner'. I'm the world's worst for not puting myself across properly. If we were talking face to face you can see the expression on a person's face or hear the tone in what's being said so you can determine straight away whether it is an aggressive comment or just a matter of opinion.

Everyone should have an opinion of course but it is very easy for an opinion to become a statement that rubs people up the wrong way.

We are all equal here and we are all suffering from the effects of a nasty disease so instead of fighting each other can we please go back to fighting sarcoidosis?

I think very highly of everyone on all the sarcoidosis forums because everyone brings something to the table, whether it is symptoms we never knew was connected to having sarcoid, support to help us through the bad patches, or knowlegde because some of us have a lot and some of us have a little but that little can make a huge difference to managing one's suffering.

I would be very happy if we could all forget what happened and welcome Frustrated61 back to the forum as I think she is feeling that no one wants her here and that is very sad because she needs support the same as the rest of us.

I hope I haven't rubbed anyone up the wrong way by posting this request and I sincerely apologise if I have. I just felt it needed to be said.

 

I might not be posting for a few days as I'm having dental surgery on Monday - I want to run away - but hopefully I will still be able to read the posts..

Keep smiling and supporting, one and all.

Huge hugs all round,

June xxx

Will be thinking of you tomorrow think we can all sympathise over dental treatment! 

 

Thank you Rachael. I really appreciate you thinking of me tomorrow. At least it will shut me up for a few days ha ha! . I am quaking a bit in my boots but the good thing is the staff are so very nice that I'm not as nervous as I would have been. I wouldn't have been in this situation if my regular dentist had treated me but he told me no one woud touch my while I was on steroids and also I had sarcoid lumps all over my palate and inside cheeks and gums.

Isn't it awful that one disease can cause so many problems within the body?

June, I thank you for your comment and you always make me/everyone feel comfortable to speak to you.  How did your dental situation go?  I've been in the hospital since Sunday evening.  The tests were grueling...I was in a store Sunday with my good friend (we had just had lunch) and then went to a store...all the sudden, I was nauseated, sweating profusely then a huge headache and chest pain going into my jaw.  I told my friend that I was going to sit down for a while and she proceeded to purchase her items. 

While sitting down, a woman looked over at me and asked if I was all right and I told her I wasn't all right that I'm feeling extremely sick to my stomach.  She asked if she could check my vitals...I guess she read the look on my face and assured me by telling me she was an RN in anesthesiology.  She did check my vitals and told the manager to call 911 (emergency). At that time, I was feeling ill and now an added embarrassment.  She said she felt I was in the process of having a heart attack. 

After entering the emergency room, I was swept off to CTScan...then 13 vials of blood...then oxygen testing...and more, you get the idea.  It was a 3 days of constant testing. 

I do have to say on the positive side, I have never rested so good in a very long time.  Yes, I was shuffled around and around, but by the latter part of the day, I was in a room w/o windows which made the room very dark (which is what I desire sometimes) and also a private room because of the lack of my immune system.

My diagnosis?  No heart attack (thank you, God!) 

The point of this post is to tell each of you that, in agreement with June, we are on this earth for a very short time.  I try to be a good person and hopefully help people and they help me.  This forum had no influence on my hospital stay, but it could have been.  With that said, words do hurt so please be very sensitive to what is being said.  We're all experiencing the same diseases (two in my case) and at times they all make us very ill.  I know for myself, stress is a factor in the lack of being healthy for my family because it can take away so much energy that it actually hurts.  I truly apologize if I offended anyone the other day, it was not my intent at all.  In the future, what I've learned the other day is that whenever I post, I will re-read (as I usually do) and re-read from the writers point to the readers point.  If I have to ask myself after I've re-read several times, does this post seem offensive.  People new to this forum really won't know the rules to posts.  Instead of attacking people, it would be kinder and helpful if the attack was taken off the table and remember, to be kind with words and you will be respected all the more.  I wasn't going to bother with this site after what transpired but June was so kind and she told me that she most welcomes me with arms open.  I will, from now on, be very careful to whom I post my opinion, comments or information to.

The episode with the emergency room was scary to me.  Even though I've been in and out of the ER for many years, this time was different.  All I could think about was my husband, children and grandbabies.  I was feeling heartbroken if I wasn't given time to enjoy all of my family and I know that may seem very self centered but truly it wasn't.  I was feeling if I had to go, my husband would be lost as I would if he had to leave.  He's been there for me through thick and thin for 40 years...we've been married for 38.  That's pretty much my whole life. My kids I know would be heartbroken because pretty much on a daily basis they tell me they love me as I tell them.  My grandkids, to whom I'm very close to, I knew that if I left, I would miss all the "firsts" in their lives...I love my family more than life itself.

With ending this post, I can only offer a suggestion to everyone....respect and you will be respected.

Warmly,

Frustrated

Oh I am so sorry to hear of the trauma you experienced, must of been awful and very scary.

Glad to hear that you are now out of danger and hopefully back to full recovery following that episode.

Take care.

 

Thank you, Linda, I appreciate your concern.  I'm still a bit out of sorts but I'm home.  You take care as well.

warmly,

frustrated

Oh you poor thing, I am so sorry to hear you had such a bad time and such a horrible fright. I know exactly what it is like to think your time has come.

I do not believe for a minute that you were being 'punished' for the previous fall-out on the forum but I know that both you and another member were suffering terribly from the stress of the fall-out so would not be surprised if this also contributed in part to your collapse.

I cannot express enough to everyone how fragile you all are stress-wise while your sarcoidosis is active. Please, please, everyone can we put the silly argument behind us all and get back to being supportive and friendly. I do not want to hear from my other member friend that she too has taken ill because I know she was getting pretty close to some sort of collapse by how she had described the way she was feeling.

I am sure, Frustrated61 that your collapse would have happened anyway because you are unwell, but because your stress factors were running high I'm sure it didn't help your recovery as you were obviously thinking about what had happened last week and making 2 + 2 = 5.

Anyway I am so glad you are feeling better and are back home with your loved ones. Please take it easy and get well soon. You obviously have a lot of family who love you very much so you owe it to them to look after youself and that goes for everyone on the forum.

The lesson here is, take a step back and a deep breathe before entering into any sort of conflict - better still don't enter into any conflict!

I want everything back to normal when I was happy coming onto the forum, not dodging bullets and wondering whose feet might have been trod on - see how silly this all sounds? No more re-reading of past posts etc or redigesting what was or wasn't said. It's over, forget it, move on.

At this point I would make a cup of tea, pass out the cake and tissues and have a good laugh at something totally unrelated.

Well I'm drinking my tea but sadly can't have the cake but I could dunk a biscuit! My daughter, thinking she was funny, pointed out that I couldn't eat a steak! I'm a vegitarian so couldn't eat a steak anyway! I could attempt gumming a tofu burger to death though! ha ha!

My poor mouth is still very sore (it's not shutting me up though!) The mouthwash is foul and the pain meds are working but knocking me for six. I'm dreaming of the day when I can knock someone out with my twinkling denture smile!!!

Right I'm off to get another prescription. Play nice while I'm out!

Hugs all round,

June xxx

 

Well said, June.  I'll be our of sorts for a bit so I may not post throughout the weekend...depends on how things are going. I hope this weekend brings joy to all of you! If not, make the joy happen

<3 to all

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