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Hypermetabolism

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nandrews
nandrews

I learnt something new about PRV, for me at least, when visiting a routine clinic appointment recently. I was wondering if some symptoms that I hadn't previously connected were caused by PRV. The symptoms were extreme sleepiness at unreasonable times, such as within couple of hours of waking up. Also some slight disorientation and confusion at times when I felt I should be clear headed. The doctor I spoke with said that the hieghtened activity in my bone marrow would be causing an increased metabolic rate.

So, he said, it would be like I was going for a run or doing some strenuous exercise! It helps to explain away the symptoms I was worried about. He suggsted it could also cause wieght loss, which sadly doesn't affect me, though I could do with losing some!

I found some medical references online which supported this suggestion saying "Hypermetabolism can cause low-grade fevers and weight loss and suggests progression to spent-phase polycythemia". I get the fevers though I would regard them as low -grade. I'll have to find out what the last part means.

Nigel

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  • harrishill1
    harrishill1 nandrews

    Posted

    Hi, Nigel. You've been through a lot, and seem to be handling it very well. It's amazing how we often seem to have so many chronic illnesses at once. I have three. Rheumatoid, gout, and PV. They say there is gene replacement therapy now for myloproliferative cancer, and for PV. I don;t think it is available yet, but a couple of PV patients with jak2 gene mutation were cured, At my age, 72, it will probably become common to do the gene therapy right after I die. Anyway, I'd rather have my illnesses than some others. I live a very normal life, and feel good most of the time. Sounds like you are also handling everything well.

    harris

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