I have been taking co-proxamol for 13 years to deaden pa...

We knew it was coming, now it has. Collecting my prescription today, I was told to see the doc. as co-proxamol is no longer available. I tried everything else 6 months ago when we first heard that co-proxamol was going to stop. There is nothing I can find to stop my art.pain, as I also take pergolide to ease my restless leg syndrome,and they are compatable. I will find a way of obtaining a continuing supply of co-prox, as I understand that they are still continuing to be manufactured. If anybody knows of a private source for these ,PLEASE let me know.

Sincerely

Anne Fraser

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dear ann.i know what you mean.had same problem myself.was on co-prox for number of years and they helped me a lot.have tried to find a private supplier,even asked for them in tenerife wher you can get most things over the counter,but to no avail.have you had any luck?let me know. regards BARRIE:wink:

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I have been taking Co-proxamol for about ten years now.

and lead a sort of normal life. i went to my doctors and have been told they are going to withdraw Co-proxamol because people are overdosing them selfs.. "i will give you a script of paracetamol that will be ok won't it" is this what we have to put up with?

why are we being punished for other people!.

cars kill people they going to ban them .. oh smoking as well they will never ban will they.

now in pain once more. and nothing seems to work.

IF THEY MADE MONEY OUT OF THEM THEY WOULD NEVER BAN THEM.

very unhappy and feedup...:ill::headhurts:

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HI

I'm now 60 butI've suffered with AS now since 1985, & have found ( to date) the best way to control it is with the following:

Arthrotec 50 ( or 75 in the case of a 'flare up') 1 with breakfast & 1 with dinner - these are an anti - inflammatory & are coated to prevent attacks on ulcers.

Remedine - a pain killer which acts with the Arthrotec - these are taken 'when necessary'

I have found this combination to be very worth while, allowing me to continue to ride my motorbike ( until I was 58) & now to exercise my Springer Spaniel... & boy, does she run !!

Hope this willh help.... please feel free to contact me for further discussion

Rod:cheers:

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i am also on co proxamol for spondilitis i am also very andry and upset.i have heard that they are continuing to supplie till 2007 after that it will be under name patient bases i hope this helps anyone.

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I too am a long term Coproxamol consumer and disgusted with the withdrawal and its devastating effect on many, many people.

I found the "Save Co-proxamol Forum" set up by Dr Kittel.

They have compiled a document that shows the flawed reasoning for the intended withdrawal.

MHRA have fed all MP's their version which does not align itself with the facts.

This document has been presented to MHRA who say they do not have the funds available to reply to it!!!!!

All people should please join this forum and maake their feelings heard.

This site is being monitored so the evidence should get through.

Time is short and more effort is needed to STOP this happening

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I also used to take co-proxamol for severe neck pain. I am now using an over the counter pain killer called Syndol, which is described as being for tension headaches, sometimes alternating this with Tramadol, my prescribed alternative to co-proxamol (ie I take two tablets of Syndol, then two Tramadol 4 hours later). If I use Tramadol alone I don't find I get pain relief. Syndol alone sometimes works well.

I have not found Co-codamol or co-dydramol effective at all.

When I get the really severe pain, I find that taking 2 Syndol with food, and then sitting still and upright for half an hour with a microwave-heated wheat bag on my neck makes the pain reduce to a bearable level.

Hope this helps somebody.

Would still be glad to hear of a truly side effect free painkiller if anyone knows of one - but I guess if there was one out there we would all have heard of it by now!

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I am trying to ween myself off co.prox as i.ve been on them for about 25 years. I can only describe the effect they have on me is that they keep me alive. I broke a part of my back when I was 18 and now I have M.E and absoultley awful PMT.

Life was much more liveable when I was able to take them. I think it disgusting that people like me have had there life line taken away. Please help me if you know of any private way I could get hold of them, I,m 43 down to my last 30 and scared.

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[quote:6e121540e9=\"J. C.\"]I am trying to ween myself off co.prox as i.ve been on them for about 25 years. I can only describe the effect they have on me is that they keep me alive. I broke a part of my back when I was 18 and now I have M.E and absoultley awful PMT.

Life was much more liveable when I was able to take them. I think it disgusting that people like me have had there life line taken away. Please help me if you know of any private way I could get hold of them, I,m 43 down to my last 30 and scared.

[i:6e121540e9]This message was automatically imported from the original Patient Experience[/i:6e121540e9][/quote:6e121540e9]HI. you can still get co-proxamol from your GP on a named patient basis, aslong as you write him or her a letter waiveing the GP of any legal responseability ect: they will act like their dumb about the drug but if you say to the GP not to treat you like a fool he will soon prescribe you some co_proxamol. Trust me it works as i got mine back after a `12 month battle with my GP>

Gopod luck.

i still get co.proxamol tablets from the abbey practice i hope this will help anyone it cost 13 pound a box 100 :D i get very bad back and now i can get a round better co.proxamol is a life saver

CO PROXAMOL IS STILL AVAILABLE IN CYPRUS IT IS CALLED DESTIROL OUT HERE AND IS READILY AVAILABLE OVER THE COUNTER

I too have been on co-proxamol for a few years.I have osteoarthritis

Every morning I take 2 co-proxamol before I get up, without them life would be very difficult.

I have tried lots of medication perscribed by the hospital but was unable to get the pain undercontrol, some causing me other complications.

I have read lots about co-proxamal, I am very careful with all my medication and keep a note when I take it.

I want to continue taking it because it is the best pain killer for me what ever anyone says.

I have been on Co-Proxamol for years - it makes me feel alive, confident, pain free.I very rarely took more than one tablet - that kept me going all day.

Since it was withdrawn,I am staggering around the house, particularly in the morning; I have become a nervous driver to the point that I feel that soon I will have to give up the car. That will almost certainly isolate me more than I already am!

I now have 24 left, - they are like precious diamonds - only to be taken when I need to put a front on - of happiness,self confidence & healthiness.

I dread the time when the 24 are gone!

Does any one out there know how I can buy co proxamol with out a prescription.

Nothing else helps me to reduce my back pain.

I certainly do not want to do any harm to myself

Andrew Brown

Although co proxamol isn't licensed any more doctors can still prescribe it on a named patient basis.

The firm Clinigen issued a statement in October 2008. Clinigen is a specialist provider of unlicensed/specialist medicines and it has the required licenses and processes approved by the MHRA to provide co-proxamol (distalgesic) to patients through local pharmacies.

If a doctor decides that there is no appropriate licensed pain relief medicine suitable for a patient, then he/she can issue a prescription for co-proxamol. A pharmacist can then order co-proxamol direct from Clinigen and explain to the patient that the medicine is being provided to the patient as an unlicensed product.

See

http://www.nras.org.uk/about_rheumatoid_arthritis/established_disease/drugs_used/_drug_updates/coproxamol.aspx