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When i was 29 i was told that i had sarcoidosis on my lungs, complete on left lung and half on right, i was out of work 7-8 months and was always so tired all the time and sore, however at the time the doctors kept telling me that they didnt know much about sarcoidosis but that it shouldnt hurt??.... Anyway time went on and i became better back to work and got on with life.
In October last year on holiday in America i got sudden bad pains in my stomach after 3 days of arriving there, i ended up going to doc and he said it was prob an ulscer, the pain lasted the rest of my holiday. When i arrived home i went to my GP who sent me for a scan on my stomach, where there were 2 liasons found on my spleen, GP called and said could be two things Lymphoma or sarcoidosis, but still not sure about stomach, went on for weeks, but with the news i moved back home to Ireland in the December.
Since then after aload of tests and biopsy on my spleen i have sarcoidosis but now there are several liasons on my spleen and are measuring about 1.5cm also it has spread to my liver. In the mean time i have also 3 lumps that have been growing under my skin next to my shin bone which is causing my leg to feel very tired and achy, when i told the doc he said that i have to wait to speak to the speaclist (who i am still waiting to see) and go from there.
I am still out of work as the pain is very unpridictable and some days i walk with a limp because of the constant pain down the left side of my body. I am tired and low in energy, has anyone got any tips, or experiencing anything like this. I have some tips..... try eating as much green veg and tumeric , also garlic, anything that is an anti inflammatory as this will help reduce the tightness in the area where sarcoid is lying.
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