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I was diagnosed with k,s,a, aged 31.y did they never find that i had an xtra cromazone.

Posted , 3 users are following.

iain09532
iain09532

All my life ive struggled to get on with people and have real friends.I felt ostiacized by my parents and have so much built up anger,due 2 never been able to cry i cant release.does any1else have this.

0 likes, 5 replies

5 Replies

  • XXYGuy
    XXYGuy iain09532

    Posted

    As you're diagnosed with Klinefleters' then I'd expect you would have had a karyotype done as confirmation, possibly you can ask your specialist doctor, (Endocrinologist maybe?),  for a copy?

    The effect of the additional X on XXY boys is not the same in all, I know of XXY men who never had any difficulty whatsoever, and resent the  idea that they did on the basis of published reports. That they resent the notion suggests to me they're not as well functioning as they claim.  smile

    The issues of anger, behaviour, your response to family situations, your parents and how they treated you, are all very complicated and need, in my opinion, specialist assistance.  Your specialist doctor may be able to help there also? 

     

    • iain09532
      iain09532 XXYGuy

      Posted

      Sorry guy for not getting back to you.havnt been on site for a year.You are totally right.I see a KS consultant who is Brilliant.
    • XXYGuy
      XXYGuy iain09532

      Posted

      A couple of years back my endo agreed they had been thinking we could only be given testosterone and that would fix all our problems, in fact it was a mistake.  The additional X has widely varying effects in us. Just one medication may not be all we need, it'd be silly to think it is, but that the medical profession for you/me.  .  
  • morten13561
    morten13561 iain09532

    Posted

    I am not diagnosed yet. I probably suffer from MAIS or PAIS. I was very angry and can totally relate. Its not easy being different. Find a therapist before anger builds up to the boiling point.
    • iain09532
      iain09532 morten13561

      Posted

      Hi Morten,tried therapist in past didnt help me,totally frustrating,i find now if i start to get angry i walk it off.Not brilliant but it works for me.Every1 is different.Hope you find out soon & that you can get all the support you need.
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