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I was diagnosed with sarcoidosis last May. I think I had it for a long time and did not know what it was. I ended up in hospital because all my joints ceased up and I could not look after myself. I also had heart palpitations, chronic fatigue, sores (granulomas) on my shins, the feeling of grit behind my eyes, headaches ete. I had a brachioscopy and lung biopsy that finally diagnosed what I had. I am 28 years old. It is so frustrating and scary to be so tired all of the time. There are things I want to do that I just cant at the moment. I have to see an eye specialist as my eyes are bad, I am afraid for my sight. I have sarcoid in my eyes, joints, skin and lungs. I have been on prednisolone since May. This has caused me to gain a stone in weight and Id swear my face is getting hairy. It also gave me a stomach ulcer so I am on nexium for that. Sometimes I just feel so alone. Nobody understands when you say you have sarcoidosis. I think people think Im lazy because I am so tired all of the time. I used to love kayaking and cycling, now climbing the stairs is like getting to Everest base camp. I dont think there is a support group in Ireland, if there is I cant find it. If anyone wants to email me to talk, I would like that. Im finding it hard to get used to the idea that I will have this condition for life. Linda
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