IIH and wondering if anyone else experiences this pain

Posted , 3 users are following.

I am on Diamox 1000/day and have been diagnosed with IIH.  When I get a headache or migraine, one symptom I have is facial pain.  Specifically, the left side of my face around my cheek bone and up to the temple will hurt. There have been times, lately, that my face hurts before an iih headache comes on (like right this very moment I am experiencing it).  Has anyone else experienced this kind of pain?

1 like, 3 replies

3 Replies

  • Posted

    Hi Laura, I am having the same pain right now. My is on my right side with pain into my jaw bone and near as well.

  • Posted

    YES. The crazy part for me is that I can tell which symptom I will be dealing with based on the time of day and month. This condition is hard to deal with.

  • Posted

    YES. The crazy part for me is that I can tell which symptom I will be dealing with based on the time of day and month. This condition is hard to deal with.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.