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Hello, I am 22 years old and was admitted to hospital in November 2021 for intense headache, pressure behind the eyes, sensitivity to light and becoming confused and mixing my words up etc. I had CT and MRI which were all okay. Lumbar puncture with an opening pressure of 29 and had papilledema.
I have since seen opthlamology and they explained the papilledema has gone and the lumbar puncture must have worked.
I have seen neurology today and they have put me down as having chronic headaches and not IIH due to my opening pressure not being above 30.
I have all the symptoms of IIH for the past 10 years but only went to the doctors last year.
I have read about chronic headaches and i dont believe it is what I am experiencing. I have headaches everyday and extreme fatigued but the headaches get worse on occassions such as sleeping with less than 2 pillows etc.
I am thinking of calling my neurologist again to question why I am not being diagnosed with IIH but I am looking for some advice if possible please?
Thank you!
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