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Hi all, very interested to read this blog - thanks for sharing your experiences. My mother-in-law is in her 60's and has had WG for 3 years. It's taken a real toll; 3 years of steroids have left her swollen, bruised and tired. She has had surgery on her cateracts but now has issues with her ears.
She does make progress but every time they reduce the steroids, the WG flares up again.
They are now looking into a Rituximab infusion instead of more steroids.
I am curious to know 2 things:
(1) Experiences of Rituximab
(2) Importance of managing the diet. I see that in other countries, WG sufferers are put on strict low salt/low sugar diets. I saw one person here referred to a large increase in their intake of fresh fruit/veg. Is this course of treatment being overlooked by UK doctors?
Thanks for any advice. Dan
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