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In November 2000 I was diagnosed with CFA following a lu...

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In November 2000 I was diagnosed with CFA following a lung biopsy after experiencing severe shortness of breath and couhging since the summer. I had strong shaddows on my lungs when x-rayed. I was treated with large doses of steroids and immunosupressants. At this point my lung capacity was around 50% and the prognosis was not good. Unfortunately I experienced many side effects from all the drugs but it worked and now, 5 Years on I am completely drug free and was discharged from my specialist 2 years ago. My last lung function test was 99.5% and my lung scan was clear.

My specialist could not explain this outcome and my diagnosis was simplified to pneumonic alveolitis.

As far as I am concerned I experienced a miricle. Thank you to all those who helped treat me. :D

[i:bcb6281a5e]This message was automatically imported from the original Patient Experience[/i:bcb6281a5e]

0 likes, 5 replies

5 Replies

  • Guest
    Guest

    Posted

    Great News

    Hope for us all!!

    My husband was diagnosed afew months ago and his lung capacity is 50 per cent.

    Iwonder if you changed your lifestyle in any way.Did you exercise more eat differently, or take any supplements?

    Look forward to hearing from you

    June

    [i:494ed6ef5a]This message was automatically imported from the original Patient Experience[/i:494ed6ef5a]

  • Guest
    Guest

    Posted

    I am very pleased at your good news and wish you well.

    Could you say what age you are? My husband has just been diagnosed aged 60, has 50% lung capacity and I have been alarmed at the rapid decline in his condition. He has just begun steroid and anti-inflammatory drug treatment this week, and I, too, was wondering whether you did anything other than take the prescribed drugs?

    THANKS

    [i:e6f95426d7]This message was automatically imported from the original Patient Experience[/i:e6f95426d7]

  • Guest
    Guest

    Posted

    What a lovely story to read after my father has been diagnosed. Unfortunately, his GP has just taken him off the medication as it doesnt seem to be working. So, I would like to ask how long you were on the medication/steriods for and also what treatment exactly you were on. I would very much appreciate your reply as I am sure you understand that this is a very worrying time. Also I would like to wish you well and hope that your health continues.

    Best Regards,

    Vanessa Pearce

    [i:ad07c9d6c9]This message was automatically imported from the original Patient Experience[/i:ad07c9d6c9]

  • Guest
    Guest

    Posted

    What a lovely story to read after my mum has been diagnosed with IPF. on top od steriod, are there any medications that you took? or are there any usefull resources about treatment for IPF patient that you know of? I would be greatfull to hear about all of things that related to the desease. Many thanks ang wish you well.

    Thi Vu:magic:

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  • Guest
    Guest

    Posted

    It was goood to read about your experience and the positive outcome. My mother has only recently been diagnosed, and only confirmed today ( 31/08/06 ). The doctor we saw was lovely and I cannot praise him enough for his genuine compassion towards my mother. We`re not sure at the moment if she is going to be treated, but at least now she/we know what the diagnosis is. We`ve not thought doom and gloom, even though some of the sites/letters could make you feel negative. My mothers attitude is ` I`ve got it, can`t do nothing about it, so I have to live/deal with it`( which i agree with). I know she`s going to have down days, but that is to be expected. Thankyou for being so positive on such a negative subject. Godbless you and thanks for sharing with us. May you stay in good health for many years to come x:D:lol::magic::cheers:

    [i:495052aaed]This message was automatically imported from the original Patient Experience[/i:495052aaed]

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