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I'm looking for some advice and guidance. My grandfather has IPF and was diagnosed last year after a persistent cough and breathlessness for around 4-5 years. He is not on any of the anti fibrotic medication yet because on his lung function test he still blows just above 80%. We had his consultant appointment just last week and were basically told to discuss a DNAR. The words of the consultant were 'you have important conversations to have' rather than the fibrosis worsening it is his DLCO - which last August was 25% and has rapidly decreased by 2% each time he has seen his consultant.. By my workings out that means hes around 18% now. When I spoke to his GP separately he said he wouldn't be surprised if my grandad wouldn't be here within the next 12 months.. Of course I'm devastated to have heard those words, but at least we can plan a short holiday and give him the best we can with what we have left.
Can anyone offer advice on DLCO? I know it is gas exchange etc but I just want someone to be straight with me. I know it won't be nice to hear but I need to make this year the best for him.
Thank you all very much.
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