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I haven't replied to the forum for a while now, I fell out with my sarcoid for a while and didnt want to deal with it. But Im back!
I'm coming up to nearly 5 years since diagnosis and treatment. I only medicate myself when I need to. Not as often as should though. I suppose my question / thoughts are about am I right in thinking I still get symptoms and side effects 5 years on, even though it hasnt erupted again. I still get massive sweats; mainly my head, neck, shoulders chest. I still get very very tired and switch off. When I dont feel well, for no reason my chest tightens, or its painful to breathe deeply. I still have a bad cough. When my sarcoid erupted, I had 4 severe infections in my legs. Those burnt the tissues in my skin and i suffer from quite bad water retention and my legs and feet hurt constantly. I also had spots on both legs which one medic said were sarcoid spots. They reflected the areas of sarcoid on each lung. Another Dr told me there isnt such a thing. But when i dont feel well or I get a cold those spots re-appear. Medics also told me the pain and swelling in my legs isnt from the cells and tissues betting burnt with infection? so what causes it then. 5 years down the line where the infections burnt my skin, the hairs have never grown back,so there has to be damage, surely. I get cross at the illness because if it had to burn the hairs from my legs, why on earth couldnt it burn all of them off, instead of patches. As a woman it could have least done me that favour!!
OK,I now sound like the rantings of a mad woman, and probably not far off, but honestly you good people. Is it me? 5 years down the line am I blaming an illness or am I intune with myself far more than I realise.. or a bit of both?
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