Is it possible to have 47XXY with regular sized testes?
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Hi, I'm a 19 year old male and feel like I fit most of the symptoms for the disorder. Tall, wide hips(both in the fat that I have and the actual bone structure) , fat distribution, late puberty(late and never completed), female pubic hair patterns, little to no body hair, gyno, many symptoms of low t, very low sperm count near 0 (from my own microscope lol), underdeveloped penis, personality traits,facial features never developed etc. . I went down the list on webmd and almost very single one was a check mark except for the tell tale under developed testes. They are by no means huge but they do fall within the normal range. I will not neglect my appointment with my physician but that is three months from now so wanted to see if I could get some info beforehand.
I feel like I fit very well into the disorder but the key sign is not there.
maybe I'm just a teen with some very late puberty. Can't wait to have my doc get the tests ordered and have everything figured out.
0 likes, 3 replies
XXYGuy andre82901
Posted
So the balls of XXY guys aren't 'under developed' they're atrophied, or shrunken, or diseased. They do actually grow normally to a point. My reading says they can grow to upwards of 12 mls volume before they atrophy. My reading also says is it possible for an XXY man to have normally sized and functioning testes. Of course such a man will not have any of the symptoms of KS as KS is a form of hypogonadism, and hypogonadism is caused by, of course, low testosterone.
Balls only get big in puberty because of more testosterone production. So when I was 11 I had more testosterone production, which resulted in development of my scrotum, and testes, and penis. I predict it must have been by age 14 that my balls started to atrophy. And 3 years later I was found to be XXY when my balls measured in at less than 1.0 mls. I had all the normal male developmental stages of puberty, frequent spontaneous erections, lots of masturbation, orgasm, ejaculation, everything. I had a frfiend who had a bigger erect penis than me, but so what? My penis was the biggest penis I'd ever had, and in my eyes it was enormous. What I didn't do was grow facial and body hair, and didn't develop musculature associated with males in puberty. Even his mother commented on how much body hair her son had, compared to me with none, and he was a year younger than me. We would sunbathe naked in her back yard, covering ourselves only when she came out, so I suppose she saw much more than we thought she saw?
I do recall not being able to find swimwear to fit me when I was 14, but I could fit female swimwear, which was most upsetting.
All people have the same degree and style of pubic hair when puberty begins, as initially pubic hair is influenced by adrenal hormones not gonadal hormones. The male pattern described is brought about by testosterone but as females don't have all that much testosterone their pubic hair doesn't develop that diamond shape most males have, after some time in puberty. So young males can have female pattern pubic hair for quite a long period of time and not be XXY or hypogonadal, it just depends on their own family genetics.
So I suggest you go and see a doctor.
john03425 andre82901
Posted
iI have read you post with interest, in truth I doubt you have 47XXY because of the size of your testes. I am not saying it's impossible but it is unlikely. It is not unusual for young men to develop late, so at 19 that is only midway for those of us with the condition because we tend to mature usually around mid to late twenties, sometimes later than that.
That said, keep your appointment with your doctor, and ask him if you should have developed more by now, then mention your other issues. But, a word of caution, after all their years of study they tend to resent patients telling them their theories and Internet search evidence, so my advice would be to prepare for your appointment by having legible notes to refer to, then list them in order of importance; practice reading them out so you feel confident enough to discuss but from a subjective position. This should elevate the doctor to listen attentively, then get eye contact and smile; people like people who smile.
i shouldn't say this here but the Mayo Clinic give very good advice on how to prepare for a doctors appt. Give it a try Andre, and good luck.
best wishes,
John
XXYGuy john03425
Posted