Is it possible to have Mast Cell Activation Disorder and have a serum tryptase within normal limits?
Posted , 11 users are following.
I have idiopathic anaphylaxis and numerous triggers: foods, environmental, drugs, odors, etc. and my medical situation fits exactly with the symptoms of these diseases. I was told by an allergist that I have "immature mast cells" I have suffered with this for decades (now 57).
0 likes, 40 replies
rose00110 gail90888
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gail90888 rose00110
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I have had ideopathic anaphylaxis for years. My specific triggers for anaphylaxis are: milk (all dairy), eggs, chocolate, papaya, mango, mold, insect stings, herbicides and pesticides, perfumes, sulfites, penicillen, sulfa, many opiods (given for pain), and other drugs. I also have itchy skin and small rash, like prickly heat or measles, asthma, osteoporosis, low thyroid, fatigue, body aches, foggy brain, and cardiac issues, just to name a few. It can be frustrating because of its sudden onset. some days are good, some not so good, and I have learned to rest when I need to. Some have said I must be faking or it is all in my head, but the doctors have assured me it is real. It has only been officially recognized since 2007 and there is still much research to do. Hope that helps. Best of luck to you.
rose00110 gail90888
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I seem to be allergic to all those things for me it started with rashes and itching three years ao did every allergy test and came out negative ive lowered my stress avoid scented stuff as much as i can i know perfume makes me sick im on a low histamine diet and its getting worse every year now i get itchy burning hives almost everyday for no reason that i know and im always tired. My axiety was very high when it began so i think that brought it on but now im trying to get a diagnose and they don't take me serious but i have a allergist/ immunologist appt on the 7 th of Nov wish me luck.
gail90888 rose00110
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rose00110 gail90888
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Yeah doctors here are not to helpful they just say i can' t do nothing for you and we always have to push if we want something done three years of this crap alrea
Imbieelf gail90888
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Hi Gail!! I have been treated for 6 months with a 90%success. So happy. Since returning from Europe seem to have a setback. Live in NJ and looking for a doctor..would you mind telling me your doctor's name in Case it continues. Thank you in advance. Karen
rose00110 gail90888
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Thank you gail im suppose to get the zolair injections soon can't wait to see if it will work and im also on a low histamine
tamera99964 gail90888
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All of these interventions helped but it wasnt until 4 months after being put on a mast cell stabilizer that I could tackle the day with any confidence that I would not need my trusty epi pens or IV meds.
And yes my serum tryptase has been within normal limts the entire time.
I wish you stable health and a medical team that listens to you. You are your own best advocate.