It is ethically correct to study XXY boys without giving them therapy?
Posted , 2 users are following.
What happened to my original question? If the moderator doesn't like the link he can always delete it and edit the end of my question.
Usually it is not ethically correct to find people with disease then refuse to treat them, so why would a survey that is currently being advertised (somewhere) for participants, be ethically correct when half the affected individuals will be given a placebo, but told they're taking testosterone?
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The purpose of this study is to determine if testosterone replacement therapy leads to changes in psychological factors and/or motor skills in adolescent males with 47,XXY This study will also evaluate whether certain genetic factors of the X chromosome affect the psychological or motor features of XXY/Klinefelter syndrome.
The study will follow half the boys who'll be given testosterone by gel, and the other half a placebo gel, for 12 months.
There are no plans stated to evaluate the intelligence or social adaptation of the parents of these boys. The full description of the study can found here:
Patient Moderator Comment: I have reinstated the information and URL (a link) referring to the study into your new discussion.
0 likes, 5 replies
XXYGuy
Posted
Thank you Moderator for including the link to the survey, that I at least have questions regarding its worth.
SunRisen XXYGuy
Posted
XXYGuy SunRisen
Posted
This particular survey wants to study the effects of persons known to be suffering from disease by not treating them, I see no difference, both situations are unethical.
I wrote to thew author oif the study, but she's notg bothered to reply, maybe she's too busy to reply? Whatever the reason, I wonder how she would like being diagnoised with a disease but not treated just to see how badly or well she got on?
Children in US America don't seem to enjoy even the most basic of rights. If their parents and doctors don't think they should be treated for a disease, they won't be.
XXYGuy SunRisen
Posted
Yes my daughter does know I'm XXY and all that entails. She knows she is not genetically related to me. Still, I do say, families are by relationships not genetics.
SunRisen XXYGuy
Posted