Posted , 7 users are following.
I am a 38 year old married women and i have just been diagnosed after about 7 months of constant, what seemed like at the time, to be constant little illnesses.....now i finally understand. My symptoms started after a holiday and i thought i just had a cold and was a bit run down, following this i then had a permanantly bunged up nose and ears that were popping and getting blocked. Finally went to the doctor in March and was initially diagnosed with sinusitis and was put on a course of antibiotics which i had a reaction too. Was then switched to another antibiotic but this did nothing for me either.
Was finally referred to an ENT consultant and after just one visit he suspected that i might have WG and took a biopsy from my nose and organised an ANCA blood test. Was diagnosed at the end of April and am surprised after research how many of the symptoms i had had for a while. My joints have been really painful for a while and i just though i had a problem with my knee, back and was wearing the wrong shoes as my toes were excruciating. Waiting to see a rheumatologist so am not on any medication at yet except for anti inflammatory meds whcih help a little.
I am amazed at how isolated i feel, even when i go out i am not my usual self and just want to sit quietly without getting too involved. I cannot, at the moment, stay out for a complete evening out as i get too tired and start to ache. My poor husband is also tired as i am not sleeping properly and therefore waking him up too.
Any advice would be greatly appreciated on how best to deal with this.
0 likes, 15 replies