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I was diagnosed with WG 3 days ago. After months of very painful joints, I finally got an appointment with a rhematologist who carried out loads of tests and has now told me I have WG, and my treatment will be taken over by the vasculitus team.
Suddenly so many symtoms I have been brushing off as nothing look like they play a part in this illness; constant tiredness, blocked ears, soar throats, runny/blocked nose, feeling like I constantly have a cold about to start.
The rhematologist painted a very positive picture. Saying there were lots of goods treatments now that could put me in to remission. That the hospital had a very good vasculitis team and I would be getting the best care. I like to think I'm a strong person and left thinking I can do whatever it takes to get well again.
Since then my rhematologist has said he is recommending a kidney biopsy because of the results of one of my tests. Maybe rather foolishly, I've been trying to find out more on the internet, but I am struggling to find anything positive about this disease. In fact quite the opposite, and the positive strong attitude I thought I had on Thursday is starting to get eroded.
I've stumbled accross this site now and read some of your comments. So I've decided to get some of what's going on in my head out and down in writing as well. I'm not sure what I'm trying to achieve. Maybe it makes me think \"well at least I'm doing something\". Maybe I'm hoping someone will respond and tell me that I can still look at it positively. I guess I have to.
I live alone and work full time doing what is usually a very stressful job. I haven't told anyone about this yet. I'm scared about the future and worried about wheather or not I have what is needed to get me through this. I'm hoping this is just me feeling sorry for myself, and I'll be able to give myself the kick up the backside I need to fight it and keep my life normal.
I apologise for my ramblings, but any comments, words of wisdom or even that kick up the backside would be gratefully received.
My best wishes to you all, Rebekha
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