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just diagnosed.

Posted , 2 users are following.

annashadow
annashadow

Hello I was diagnosed a few weeks ago, as taken into hospial in emergency as blood pressure 218/120 doc did ecg and found I had had 2 silent heart attacks she was worried I was about to have a massive one!After many blood tests and tests for my heartDoc came and said oh well your blood is very thick so we are going to take some away and hope it will improve how u feel.I wasnt really that with it and just said ok,came home after 10days and decided to see what polycythemia was all about, so it was a bit of a shock.Went to see my own gp who apologised that she hadnt picked it up as she had trained with the specialist I am going to see re blood.I am very angry as previous gp in same practice had said 2yrs ago you have thick blood so need to take some off, then I never heard another word,so have had for some time.I also have fybromyalgia so some symptoms are similar.I have been so ill the last 6 mths gradually getting worse,these are some of my symptoms: headaches,itchy,red bruising like round blobs come up arms legs etc,dreadful pain over body especially legs hips back,dreadful lethargy where if i bend over its agony to get back up, and at presant can hardly walk from one room to the other,which means I cant take my dear 4 Bichon Frise out, my friend and husband do it and I miss it so much.My life is at a standstill at the moment and I pray once I have seen the specialist he can get me back on track a bit.Look forward to replys. :cry:

0 likes, 5 replies

5 Replies

  • wernotalone
    wernotalone

    Posted

    hi there, please dont worry, i too am a newly diagnosed my story is under (buddyrider). I am 38 female and also had the usual symptoms, headaches, redness, sweats, fatigue..bla bla...i have had 5 venesections now and feel a lot better. But what i did notice is that between the last venesection and the previous venesection which was 6 weeks proir i started getting headaches, sweating, redness and tiredness...i go back 9th to hospital for blood check, which is 4 weeks in between hospital visits..as yet i have not symptoms...fingers crossed it stays that way..as the symptoms really get u down...and only we know how it feels eh!..look forward to your reply.. :wink:
  • annashadow
    annashadow

    Posted

    hi i am not worried as such, still have a lot of the symptoms the worst trying just to walk from rom to room, and the pain in legs is so bad.Trouble is I also have fubromyalgia which match a few syptoms.Br glad when I see specialist then perhaps we can sort out what is what.My home feels like a prison now as i would only be able to go out with a wheelchair and dont like that.At my age people just see a granny when your younger u get more empathy!What a strange disease it is.Thank god I had blood pressure so hi!how long would i have walked around feeling I was dying!My dear dogs hate me not taking them out althoughothers do.Do you know what type you have?thankyou for replying.I wish there was a live site we could all talk on. smile
  • wernotalone
    wernotalone

    Posted

    i have primary polycythaemia. still getting used to the idea eh.. my mother has fibromyalgia, i know how painful she gets, it must be doubley hard for you. sad ..... yes it would be good to have live chat...your poor dogs... my blood pressure is also trending on the high side, but after venesections it goes down, but rises slowly....the condition and all that it comes with has to become a way of life..as there is no cure...
  • wernotalone
    wernotalone

    Posted

    had hospital 9th sept and had blood checked, and no venesection this time, so glad.. platelets still high 757, red blood cells count 13.0, Hct 43.80... :D
  • annashadow
    annashadow

    Posted

    [quote:c80f565eaf=\"wernotalone\"]hi there, please dont worry, i too am a newly diagnosed my story is under (buddyrider). I am 38 female and also had the usual symptoms, headaches, redness, sweats, fatigue..bla bla...i have had 5 venesections now and feel a lot better. But what i did notice is that between the last venesection and the previous venesection which was 6 weeks proir i started getting headaches, sweating, redness and tiredness...i go back 9th to hospital for blood check, which is 4 weeks in between hospital visits..as yet i have not symptoms...fingers crossed it stays that way..as the symptoms really get u down...and only we know how it feels eh!..look forward to your reply.. :wink:[/quote:c80f565eaf]
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